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Knowledge Database Presentation for the lecture of: Patrick Corrigan, USA Topic of lecture: Erasing the Stigma of Mental Illness: What Says the Dodo Bird? The lecture was given at the 6th International Conference on Disabilities Beit Issie Shapiro - Israel Year: 2015

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Knowledge Database

• Presentation for the lecture of: Patrick Corrigan, USA

• Topic of lecture: Erasing the Stigma of Mental Illness: What Says the Dodo Bird?

• The lecture was given at the 6th International Conference on Disabilities Beit Issie Shapiro - Israel

• Year: 2015

Erasing the Stigma of Mental Illness

Patrick CorriganIllinois Institute of Technology

What Says the Dodo Bird?

STOP

What is stigma?

How might it be fixed?◦ Unintended consequences

Contact-based approaches

BLENDING◦ Social Cognitive Approaches◦ Health Services Research Approach

Goals

UNINTENDED CONSEQUENCES

Everybody has won and all must have

prizes!

Everything Works

Psychoanalysis

UnintendedConsequences

What do we do?

Cognitive Therapy

Social Justice

BEAT RACISM

X

DON’T ASKDON’T TELL

BEAT HOMOPHOBIA

Pope Francis I Inaugural MassMarch 19, 2013

“THE POOR!”“THE WEAK!”

“THE LEAST IMPORTANT!”

Pope Francis I Inaugural MassMarch 19, 2013

“THE POOR!”“THE WEAK!”

“THE LEAST IMPORTANT!”“Whatsoever you do to the least of my brethren, that you do unto me!” John

BESTOW

EMPOWER

WHAT IS STIGMA?

15

16

17

19

People with mental illness are homicidal maniacs

In the movies

20

21

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People with mental illness are homicidal maniacs

In the newspapers

23

25

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People with mental illness are homicidal maniacs

In advertising

27

30

31

People with mental illness are homicidal maniacs

In comics

32

35

Benevolence stigma

36

37

38

39

40

Trenton State Hospital has fire.

42

Roasted Nuts

Has Stigma Changed?

DANGER

Phelan, Link et al

43

0%10%20%30%40%50%60%70%80%90%

100%

1956 1996

danger

Lab's PC
moved text and graph to the left

Has Stigma Changed?

DANGER

Phelan, Link et al

44

0%5%

10%15%20%25%30%35%40%

1956 1996

danger

Lab's PC
moved text and graph to the left

Has Stigma Changed?

DANGER

Phelan, Link et al

45

0%5%

10%15%20%25%30%35%40%

1956 1996

danger

Lab's PC
moved text and graph to the left

Has Stigma Changed?

DANGER

Phelan, Link et al

46

0%5%

10%15%20%25%30%35%40%

1956 1996 2006

danger

Lab's PC
moved text and graph to the left

47

Public stigma

Self-stigma

Label avoidance

Structural stigma

stereotype

prejudice

discrimination

Structures

-----------types-----------

48

STEREOTYPES◦All Irish Americans are drunks and beat their wives.

PREJUDICE◦That’s right. They’re drunks and I loathe them.

DISCRIMINATION◦So, don’t: hire, rent, or befriend them

49

STEREOTYPES◦People with MI are: weak, dangerous….

PREJUDICE◦They are bad because: scary, shameful.

DISCRIMINATION◦So, don’t: hire, serve, or rent to them

50

Public stigma

Self-stigma

Label avoidance

Structural stigma

stereotype

prejudice

discrimination

Structures

-----------types-----------

The Egregious Effects of Public Stigma:Its Impact on SOCIAL INCLUSION

Lost employment Subpar housing Worse health care

Worse educational opportunities Diminished legislative support Alienated faith communities

Coercive treatment

WORSE HEALTH CARE

PTCA: percutaneous transluminal coronary angioplasty Druss et al., 2000

People with mental illness recover.

They should determine all their goals and interventions to reach those goals.

Actions: ◦ Reasonable accommodations◦ Community supports

Affirming Attitudes

STOP

EASY STUFF:Just change the words!Just cure the disease!

Leprosy to Hansen’s Disease

Dementia to Alzheimer’s

Mental Retardation to Intellectual Disability

Mania to Bipolar Illness

Just Change the Words!

Japan: Seishin-Bunretsu-Byo to togo shitco sho

Korea: Jeongshin-bunyeol to Johyun-byung

Hong Kong: Jing Shen Fen Lie to Si Jue Shi Tiao

Singapore, China

The East Asian Experience

“mind split disease” “integration disorder”

“attunement disorder”“mind splitted disorder”

“dysfunction of thought and perception”

“splitting of the mind”

Sartorius et al., 2014

The Data◦ Japan: mixed findings (Takashi et al., 2009, 2011)◦ Relationship between name recognition and

recovery (Sato in preparation, 2014)◦ Hansen’s Disease (Oliveria et al., 2003; Van Brakel et al., in press)

Perpetuates the difference

Prejudice and discrimination more than words.◦ MODERN RACISM

.

Just Change the Words!

It Looks easy:

NIMH and other funders decrease supportAdvocacy groups: No longer a problem

KNOWLEDGE IS GOLD:Educate stigma away!

75% US school districts 43 countries

RESEARCH

Uncertain effects No effects RTI (1994) Cal Dept Ed (1995) U Maryland (1998)SIGNIFICANT effects APA (1999) Indiana U (1992)

Mental Illness is a Brain Disorder!

Mental Illness is a Brain Disorder!

RECOVERY

Mental Illness is a Brain Disorder!

RECOVERY

HIRE THEM?RENT TO THEM?EQUAL HEALTH CARE?

Meta-Analysis: Knowledge and Stigma

Knowledge: Causal Beliefs Stigma: Acceptance

Sixteen representative samples of nation-defined populations

230 to 6000 Ss Response rates: 65-85%

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

0

10

20

30

40

50

60

70

1990 1994 1998 2002 2006

SzDep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Inherited/Genetic

META-ANALYSIS FINDINGS: CAUSE

0

10

20

30

40

50

60

70

80

1990 1994 1998 2002 2006

SzDep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Brain Disease

META-ANALYSIS FINDINGS: CAUSE

0

10

20

30

40

50

60

1990 1994 1998 2002 2006

SzDep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Co-worker

META-ANALYSIS FINDINGS: ACCEPTANCE

0

10

20

30

40

50

60

1990 1994 1998 2002 2006

SzDep

Schomerus, Schwann, Holzinger, Corrigan, Grabe, Carta, & Angermeyer, 2011

Neighbor

META-ANALYSIS FINDINGS: ACCEPTANCE

PROTEST:The Pros and CONs!

72

Protest◦Review stigmatizing images

◦Shame on you for thinking that way

73

74

Beware the rebound effect

the white bear

Wonderland2000

NAMI - stigmabusters

The JASONUT

The CRAZY FACE

The SUICIDE SQUEEZE

Located in Campbell and San Jose California

Psycho Donuts: Tasteless

                                                                                          Join the national on-line food fight.

Help turn lemon donuts into lemonade.

Join the national on-line food fight.

Help turn lemon donuts into lemonade.

examiner.comI'm an advocate of equal rights and a more tolerant world toward all people of different races, religion, gender, and sexual orientation; but that is it. Any thing else is just moronic. Stan Rezaee, Aug, 2009

FRANCHISEOPPORTUNITIES

CONTACT vs EDUCATIONThe Pros and CONs!

81

Contact

“Meet Bob Lundin”

82

Bob’s story◦ My name is ______ and I have a severe

mental illness called schizo-affective disorder

◦ My childhood was not unusual…

◦ Unfortunately, my mental illness was traumatic. It did not go away quickly…

◦ Despite these problems, I have achieved several accomplishments.

Meta-Analysis:

Contact vs Education DV’s

◦ Overall◦ Attitudes◦ Behavior

> 38,000 Ss 79 studies; 13 RCTs

Corrigan, Michaels et al., 2012

Mean effect sizes: RCTs only

p<.05

attitudes0

0.1

0.2

0.3

0.4

0.5

0.6

educationcontact

*

***

***

k=136

Mean effect sizes:Pre-Follow-up

TargetedLocalCredibleContinuousCONTACT

TLC

87

Corrigan, 2011

Who should targets be?

TargetsLandlordsHealth care professionalsTeachersLegislators Employers

What is local?

LOCAL

x

CHICAGO: the heart and brains of Illinois

ILLINOIS

Does it play in

PEORIA?

CityNeighborhoodsWhat defines a neighborhood?

Faith-based communities

93

Local

94

Good stigma change credible

continuous

Contact with whom?

Example◦Military (PTSD)◦Other enlisted membersMarines from marinesSailors from sailors

Credible

95

Once is not enough

And cannot be carbon copies

Continuous

96

The GRAND PLAN

Come out everyone

Come out everywhere

the Grand Plan

Come out Mad

Come out Proud

Rod SteigerMike Wallace

Margot Kidder

Patty Duke

COMING OUTPROUD

to erase the stigma of mental illness

Passive

COMING OUT PROUD◦assertive

Disclosure?

Disease Identity

DONT BE A MENTAL PATIENT

Human Identity

EMBRACE WHO YOU ARE

Three Lessons

◦Consider the pros and cons of disclosing

◦There are different ways to disclose

◦Telling your story

Honest,Open,Proud program

2 RCTs

HOP Cntrl3.63.8

44.24.44.64.8

55.2

PrePost3-wk F-up

Disclosure Benefits

2X3 ANOVAF=4.70, p<.01

N=100Rusch et al., 2014

p<.05

HOP control HOP control9

10

11

12

13

14

15

16

17

prepostfollow-up*

*

**

HARMAPPLY

SELF STIGMA

*

Corrigan et al., in press

HOP control HOP control15

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19

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22

23

prepostfollow-up

± p<.10 * p<.05 ** p<.01

COPING RESOURCESSTIGMA HARM

**

+

+*

**

What are the pros and cons of disclosing?◦ Which vary by setting: work, vs family vs faith-

based comm

What are rarely safe ways to come out?

What is your story?

www.HOPprogram.org

Honest, Open, Proud

theADVOCATE’S AGENDA

117

“Let our first act every morning be to make the following resolve for the day: I shall not fear anyone on earth. I shall fear only God. I shall not bear ill will toward

anyone. I shall not submit to injustice from anyone. I shall conquer untruth by truth. And in resisting untruth, I shall put up with all suffering. ”

Mahatma Gandhi

National Consortium on Stigma and Empowermentwww.ncse1.org

Honest,Open,Proud to erase the stigma of mental illnesswww.hopprogram.org

[email protected]