Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge 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Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom

EUROPA DONNAThe European Breast Cancer Coalition

AnnualReport

EUROPA DONNA – The European Breast Cancer Coalition is an independent non-profit organisation whose members are affiliated groups from countries throughout Europe. The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the EU.

2012

CONTENTSINTRODUCTION 3

EDUCATIONAL OPPORTUNITIES 4EUROPA DONNA Breast Cancer Advocacy Leader ConferenceEUROPA DONNA Annual Breast Cancer Advocacy Training Course8th European Breast Cancer Conference

KNOWLEDGE DISSEMINATION 5Breast Health DayBreast Health Day Campaign Materials

Breast Health Day VideoThe Breast Health Day PledgeWebcasts on YouTube Breast Cancer Facts VideographicBreast Health Day Poster and Mini-diaryBanners and Website Badges Social Networking Sites

PublicationsBreast Health Day NewsThe Advocate’s Guide to Understanding Breast Cancer ResearchClinical Trials and Breast CancerEUROPA DONNA NewsHighlights of the 10th EUROPA DONNA Pan-European ConferenceA Short Guide to the European Guidelines for Quality Assurance in Breast Cancer Screening and DiagnosisWho we Are EUROPA DONNA brochure

Websiteswww.europadonna.orgwww.breasthealthday.org

COLLABORATION AND NETWORKING 7Parliamentary and Policy Activities

Meeting with the European Commission’s Joint Research Centre on the accreditation of breast servicesBreast Health Day Information Day at the European ParliamentBreast Health Day presentation at the European Parliament conference on the role of physical activity in the fight against breast cancerEuropean Partnership for Action Against Cancer (EPAAC)AURORA Project CollaborationEuropean Patient Forum Annual General Meeting and ConferenceHealth Technology Assessment (HTA) workshopClinical/Commercial Payer Forum

Development Programme

Sponsor Meeting

COMMITTEE MEMBERSHIP AND ACTIVITIES 8Clinical TrialsPolicyConferencesOther Meetings

FINANCIALS 9

ACKNOWLEDGEMENTS 10

GRANTS AND DONATIONS 10

EUROPA DONNA EXECUTIVE BOARD 11

EUROPA DONNA NATIONAL REPRESENTATIVES 11

EUROPA DONNAExecutive Board 2012

PresidentElizabeth Bergsten Nordström (Sweden)

Vice-PresidentSema Erdem (Turkey)

TreasurerGertrude Abela (Malta)

Past President Bettina Borisch (Switzerland)

MembersRoswitha Britz (Spain)Mojca Milavčič (Slovenia)Antonella Moreo (Italy)Ene Tomberg (Estonia)Nicole Zernik (France)

EUROPA DONNA Head Office Staff

Executive DirectorSusan Knox

Head of Policy/ Public Affairs

Karen Benn

Communications OfficerBarbara Klein

Admin/Events OfficerDaniela Pirisi

Development OfficerPaige Robinson

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 20122

2012

Significant progress has been made on numerous key projects for breast cancer advocacy in Europe in 2012. The Joint Research Centre of the European Commission has designated a team to develop the accreditation scheme for breast cancer services. This follows many EUROPA DONNA advocacy initiatives promoting this scheme for the last few years. ED participated in an introductory meeting in June and will continue to contribute the patient perspective on this scheme throughout the various stages of the project. Our 2012 core programme has been supported by a grant from the Executive Agency for Health and Consumers (EAHC) of the European Union, thus enabling us to continue to provide education, information and support programmes to our 46 European member country groups. The European Breast Cancer Conference (EBCC) took place in Vienna in March; ED is a co-organiser of this important scientific conference with the European Society of Breast Cancer Specialists (EUSOMA) and the European Organisation for Research and Treatment of Cancer (EORTC). ED provides input into all areas of this conference, including programme development and advocacy participation in various sessions and lectures. This conference and our Advocacy Leader Conference, also held in 2012, were essential to ensuring that our advocates gain the knowledge and updated information needed to carry out their advocacy work nationally. Advocacy involvement in the health technology assessment (HTA) process will be important in the future and we have begun providing training for our groups concerning this important aspect of health care provision in many of our member countries. We are expanding our relationship and collaboration with Breast International Group (BIG) in a number of new and exciting research projects, again to ensure that the patient advocacy point of view is expressed and considered in relation to key projects for the future. To further our involvement in research issues nationally we developed a new booklet for advocates this year entitled The Advocate’s Guide to Understanding Breast Cancer Research. In addition, we continue to pursue and promote improving advocacy for women with metastatic breast cancer; to this end, we have begun a new collaboration with the European School of Oncology to provide the European advocacy contribution to the Advanced Breast Cancer Second International Consensus Conference (ABC2) in 2013. Our Breast Health Day prevention programme continues to capture the attention of thousands of women around the world and to now be a focus for many of our national ED groups. Prevention has become an essential part of our programming and will become a pillar of our next strategic review, which was begun in the third quarter. Finally, preparations are under way for our 11th Pan-European Conference, which will take place on 19-20 October 2013 in Prague. Many of the key projects begun in 2012 will be reviewed at this important biennial advocacy conference.

While much has been achieved, the challenge remains to ensure that all women in Europe have access to best practice for screening, early diagnosis and treatment, as well as correct information concerning lifestyle factors that can prevent the disease.

Susan KnoxExecutive Director

INTRODUCTION

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 2012 3

EDUCATIONAL OPPORTUNITIES

Milan, Italy • 22 September 2012

More than 50 National Representatives and delegates from 32 of our member countries gathered at our second Breast Cancer Advocacy Leader Conference in Milan on 22 September. Presentations featured the London School of Economics’ Panos Kanavos, who gave a lively, infor-mative talk on health technology assessment. Other sessions covered how to establish and run a non-profit organisation and tips for understanding breast cancer research. In workshops, participants shared ideas on ad-vocating for the needs of women with metastatic breast cancer, understanding breast cancer research, manag-ing and organising EUROPA DONNA fora, as well as key strategic approaches for our organisation. Topic-related reports have been published on the conference.

Milan, Italy • 9-11 November 2012

In 2012, 58 breast cancer advocates from 33 of our mem-ber countries completed our two-and-a-half day Breast Cancer Advocacy Training Course, where they learned about the latest developments in breast cancer research and treatment, as well as advocacy techniques and com-munications skills that can be used to influence public health policy. The two-and-a-half-day course is divided into three modules. The first part (one day) covers an in-troduction to EUROPA DONNA and scientific topics, in-cluding basic biology and genetics of breast cancer, epi-demiology, treatment and surgery options, clinical trials, diagnosis and early detection, mammography screen-ing guidelines, specialist breast units and psychosocial factors. The second segment covers advocacy, lobbying and includes a special workshop on “Advocating for EU Guidelines” (half a day) and the third section consists of communication skills training (one full day). The course received excellent feedback in 2012 from participants who rated it as “very useful”.

Vienna, Austria • 21-24 March 2012

In partnership with the European Organisation for Research and Treatment of Cancer (EORTC) and the European Society of Breast Cancer Specialists (EUSOMA), we hosted the 8th European Breast Cancer Conference (EBCC-8) in Vienna, Austria from 21-24 March. More than 3,000 breast cancer specialists and advocates attend-ed sessions on topics ranging from the latest treatment and diagnostic methods, to survivorship and the benefits of lifestyle interventions. Our Past President, Bettina Borisch, opened and closed the conference and reminded participants of the need for further advocacy for mammography screening and breast unit implementation. In a session on this topic, she also presented the results of our previous survey on spe-cialist breast unit implementation. Many of our board members and national representatives also chaired sessions and presented on topics ranging from implementing the European Guidelines for Quality Assurance in Breast Cancer Screening and Diagnosis, to healthy lifestyles and survivorship issues. Metastatic breast cancer was also the focus of one of our special EUROPA DONNA sessions. EBCC is unique in that it brings together all those concerned with breast cancer across Europe – researchers, scientists, physicians and ad-vocates – to share best practice and the most recent advances in breast cancer research and clinical practice. Conference coverage is also provided in our 2012 newsletter.

EUROPA DONNA Breast Cancer Advocacy Leader Conference

EUROPA DONNA Annual Breast Cancer Advocacy Training Course

8th European Breast Cancer Conference

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 20124

Europe-wide • 15 October 2012

Our fifth annual Breast Health Day aimed to reach out to women of all ages across Europe and beyond to make them aware of the healthy lifestyle choices that can have a positive effect on their breast health. It also aimed to reach MEPs through an Information Day at the European Parliament in Brussels. Held yearly to promote breast can-cer prevention, this year’s Breast Health Day was dedicated to the theme “Make Good Choices for Your Breast Health” to emphasise that daily healthy lifestyle choices, such as being active, eating a well-balanced diet and maintaining a healthy weight, can protect wom-en’s future breast health. The event was also promoted throughout our member countries, featuring a broad range of colourful and active events, and through an extensive web-based campaign using the websites www.breasthealthday.org, www.europadonna.org and social networking sites such as Facebook, Twitter and YouTube. Activities across Europe are posted on www.breasthealthday.org, the cam-paign website, and have been pub-

lished in our Breast Health Day News sum-ming up the campaign.

KNOWLEDgE DISSEMINATION

BREASTHEALTH DAY

15 OCTOBER

Breast Health Day Video: An entertaining, animated video encouraged women to make a variety of healthy choices through physical activity and eating a healthy diet. It featured examples of less healthy behaviour and the healthy choices that can be used to replace them. The video is available on the Breast Health Day website and sharable via social networks. To ensure that women around the globe used the video, the final frame featured this year’s slogan “For Your Breast Health” translated into 27 languages. It also contains a tag cloud of videos of healthy pledges sent from around the world.

The Breast Health Day Pledge: To foster active involvement in the Breast Health Day campaign, women were able to send in a per-sonal pledge for their breast health through a web application on the Breast Health Day website and also share it through the social networks. A tag cloud on www.breasthealthday.org featured the pledges of those who joined the campaign and on 15 October the videos received were added to the final frame of the campaign video.

Webcasts on YouTube: Head of the Section of Nutrition and Metabolism at the International Agency for Research on Cancer Isabelle Romieu provided the latest epidemiological evidence on lifestyle factors and breast cancer prevention. The videos are webcasts of her presentation at the 8th European Breast Cancer Conference in March 2012 and cover the effects of alcohol, obesity, physical ac-tivity, the global burden of breast cancer and lifestyle recommendations.

Breast Cancer Facts Videographic: An animat-ed video gave a lively presentation of breast cancer facts and statistics.

Breast Health Day Poster and Mini-diary: These promotional materials were available for download from the Breast Health Day website. The mini-diary is an 8-page booklet with healthy hints and a checklist for making daily healthy choices.

Banners and Website Badges: Three banners and badge sizes were avail-able for people to add to their websites to promote the BHD message.

Social Networking Sites: Our EUROPA DONNA and Breast Health Day pages on Facebook, Twitter and YouTube had high traffic throughout the campaign. Many ED Fora joined in the social networking activities by making Breast Health Day posts and displaying the Breast Health Day banner. Our Twitter reach was 336,302 with 257 followers, and our Breast Health Day YouTube channel had 7,022 global channel views. On Facebook we had 1,563 fans and 70,778 page visits after Breast Health Day.

Breast Health Day Breast Health Day Campaign Materials

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 2012 5

◗ Breast Health Day NewsA 4-page report covered the 2012 Breast Health Day activities, including those held at the European Parliament, all the campaign materials available and summaries of the activities held in our member countries across Europe.

◗ The Advocate’s Guide to Understanding Breast Cancer Research

Since EUROPA DONNA’s advocacy work is grounded on evidence-based prac-tice, this 20-page booklet is designed as an aid to understanding breast cancer research, whether presented in scientific papers or at conferences. It defines key epidemiological concepts, types of studies, statistical terms and calculations. It also explains some of the common figures and tables used to illustrate scien-tific findings. A self-assessment section for advocates to test their understand-ing of the concepts is provided at the end.

◗ Clinical Trials and Breast CancerWe published an update of our guide to clinical trials and breast cancer. The booklet describes the clinical trial process, the possible risks and ben-efits of participating in a clinical trial, how to find clinical trials and other helpful information women and advocates need to know about this topic.

◗ EUROPA DONNA NewsOur annual newsletter was distributed widely in September and featured coverage of the 8th European Breast Cancer Conference, interviews with key opinion leaders, articles on living with breast cancer, our advocacy activi-ties at the European Parliament and support to our member Fora, as well as reports from our member countries, among other topics.

◗ Highlights of the 10th EUROPA DONNA Pan-European Conference

Highlights of our Pan-European Conference held in Malta in October 2011 were widely distributed at conferences and meetings. The high-lights cover presentations on the latest in diagnosis, treatment, meta-static breast cancer, breast nursing, breast unit accreditation, as well as the key-note address from the European Commissioner for Health and Consumer Policy, John Dalli, among other topics.

◗ A Short Guide to the European Guidelines for Quality Assurance in Breast Cancer Screening and Diagnosis

In 2012 we continued our efforts to disseminate our Short Guide to the European Guidelines for Quality Assurance in Breast Cancer Screening and Diagnosis by translating it into Portuguese, Latvian and Norwegian. It has now also been printed in Dutch, English, French, German, Georgian, Greek, Italian, Polish, Russian, Spanish, Swedish and Turkish. The guide summarises the full EU guidelines document and describes, in language suitable for the lay public, best practice in mam-mography screening programmes and the requirements of a specialist breast unit. It has been well received by professionals and advocates and serves as the primary tool in lobbying efforts across all our mem-ber countries. It can be downloaded in all available languages directly from our website www.europa donna.org.

◗ Who we Are EUROPA DONNA brochureEarly in the year, we published a four-page brochure describing our organisation, providing some European breast cancer statistics, our 10 goals, our priorities and advocacy initiatives, as well as member coun-try contact information.

EUROPA DONNA presents Breast Health Day at European Parliament conference on the role of physical activity in the fight against breast cancerDr. Birgit Carly of EUROPA DONNA Belgium presented the Breast Health Day campaign as EUROPA DONNA’s initiative to promote breast cancer prevention through healthy lifestyles at the conference “Physical Activity: A Useful Tool in the Fight Against Breast Cancer in Europe”. Held in French at the Euro-pean Parliament in Brussels on 4 December 2012, the conference was organised by Sport and Citizenship within the framework of the European Union’s Europe for Citizens Programme. Its aim was twofold: to increase awareness among the European institu-tions of the benefits of physical activity in the population, and particularly in the fight against breast cancer, and to call upon European decision-makers to launch a wide-scale campaign on the topic. BHD being a fitting example of such a campaign, Dr. Carly was invited to give an overview of its history, the media outreach programme and the impressive activities undertaken in ED member countries.

Prof. Martine Duclos, of the Sports Medicine Service at the Université d’Auvergne in Clermont-Ferrand, France, presented the scientific evidence backing the role of physical activity in breast cancer prevention. In 184 of 243 (i.e., 76%) studies con-ducted between 2002 and 2010, a 25% reduction in breast can-cer was shown among physically active women compared with their inactive counterparts. An exposure-response relationship was seen in 28 out of 33 studies. In one study, 6.5 hours per week of physical activity was associated with a 28% decreased risk of breast cancer. A recent study has further shown that in postmen-opausal women, the risk of developing breast cancer decreased 10% with every 2 hours of extra physical activity per week.

Additional presentations covered the benefits of sport and physical activity as a global public health strategy. This is in keeping with the European Commission programmes encour-aging healthy eating and physical activity as methods to pre-vent diseases and reduce overweight and obesity. The European Commission’s 2007 White Paper on Sport states, “The World Health Organisation (WHO) recommends a minimum of 30 minutes of moderate physical activity (including but not limited to sport) per day for adults and 60 minutes for children. Public authorities and private organisations in Member States should all contribute to reaching this objective. Recent studies tend to show that sufficient progress is not being made.”

BREASTHEALTH DAY

15 OCTOBER Breast HealtH Day

autumn/Winter 2012

“Breast health is up to you”

Breast Health Day on 15 October aims to disseminate information concerning breast health and to raise awareness of prevention and early detection of breast cancer among women and girls across the globe.

Make Good Choices for your Breast Health

InsideThe Breast Health Day 2012 Campaign

Breast Health Day Reports from Across Europe

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Nessa Childers, MEP Ireland, and Karen Benn, ED Policy Officer

Rita de Coninck, National Representative ED Belgium, Nessa

Childers, MEP Ireland, and Birgit Carly, National Delegate ED Belgium.

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EUROPA DONNA’s Breast Health Day information event welcomes MEPs at the European ParliamentEUROPA DONNA held its annual Breast Health Day Informa-tion event in collaboration with Nessa Childers, MEP, at the Eu-ropean Parliament on 10 October to spread the Breast Health Day message ‘Make Good Choices for your Breast Health’ to parliamentarians and other policy-makers. At an information stand decorated with posters, representatives of ED Head Office and ED Belgium distributed flyers to MEPs to raise awareness of the important steps that can be taken to prevent breast cancer later in life. The ultimate goal of this event is to have the Euro-pean Parliament declare 15 October to be Breast Health Day.

BHD_2012.indd 1 01/02/13 10:44

KNOWLEDgE DISSEMINATION

Understanding Breast Cancer Research

the advocate’s guide to

ED_literatura_original.indd 1 29/08/12 10:53

www.europadonna.orgWe continue to update our website with our latest materials and our annual audited financial state-ments. The website includes links to our social networking pages on Facebook, Twitter and YouTube. Information about our upcoming advocacy events is also featured there. We are currently working on redesigning our website.

www.breasthealthday.orgOur Breast Health Day website re-ceived 4100 visits from 97 countries from the start of the campaign.

Publications Websites

Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská RepublikaDanmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston TurkiyeUkraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania

Clinical Trials and

BreastCancer

ED_trials_guide.indd 1 17/02/12 17:59

News on

Breast Health Day

and forum support

The year’s

European policy activities

Reports from

member countries

• • • • • • • • • • • • • • • • • •

• • • • • • • • • • • • • • • • • •

Conference highlights from EBCC-8

Answering the advocates: Giuseppe Viale on pathology andpatient care plus

Julia Rowlandon survivorship

A survivor tells us about the positive changes breast cancer has brought to her life

ED_News_2012.indd 1 10/07/12 16:43

Malta 22 – 23 October 2011

T he 10th EUROPA DONNA Pan-European Conference, held in Malta on 22 and 23 October

2011, highlighted the priorities for the European Breast Cancer Coali-tion and its “Challenges for the New Decade”, the conference theme. One of the main challenges is the imple-mentation of specialist breast units that comply with the European Guidelines for Quality Assurance in Breast Cancer Screening and Diagnosis, and European accreditation of such units. The 220 breast cancer advocates and specialists from 37 countries in attendance had the privilege of hearing key-note speaker John Dalli, the European Commissioner for Health and Consumer Policy, ex-press the Commission’s commitment to working toward the creation of a European specialist breast unit accreditation scheme.

In opening the conference, Bettina Borisch, President of EUROPA DONNA, said, “When we talk about the 10th Pan-European conference, we talk about ideas of advocacy, of fighting to improve breast cancer edu-cation, information, appropriate screening, quality treatment and care for all women in Europe, independent of their socioeconomic status and where they live. This also means fighting for patient rights, social justice and equity, since inequali-ties still exist among EU countries, but also in countries themselves and even within cities.”

The biennial EUROPA DONNA Pan-European Conference is unique in Europe in that it is the only conference dedicated primar-ily to breast cancer advocates and survivors.

1010thEUROPA DONNAPan-EuroPEanConfErEnCE

Highlights of the

I N S I D EBreast cancer services in Europe: the European Commission’s perspective 

John Dalli, European Commissioner for Health and Consumer Policy  2

Meeting the 2016 deadline:  specialist breast unit implementation  

Robin Wilson, President of EUSOMA  4

The specialist breast nursing curriculum: progress so far 

Manuela Eicher, University of Applied Science of Western Switzerland  6

Latest technology  and advances in radiotherapy  

Philip Poortmans, Radiation Oncologist, Institute

Verbeeten, The Netherlands  8

Update on breast cancer  treatment and trials 

Olivia Pagani, Institute of Oncology of Southern Switzerland  9

Metastatic breast cancer: advocacy issues and needs of patients 

Doris Fenech, breast nurse and advocate, and Karen Benn,

ED Policy Officer  10

Capacity building:  starting up and raising funds  

Galina Maistruk, gynaecologist and NGO founder  12

Highlights from  Breast Health Day 2011 

Susan Knox, ED Executive Director  13

European Policy Highlights 2011 Karen Benn, ED Policy Officer  13

Advocacy workshops  14

European Breast Cancer Advocacy: Challenges for the New Decade

Bettina Borisch, John Dalli and Susan Knox

Who we

AreEUROPA DONNA – The European Breast Cancer Coalition is an independent non-profit organisation whose members are affiliated groups from countries throughout Europe. The Coalition works to raise awareness of breast can cer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the European Union.

Albania Austria Belarus Belgium Bulgaria Croatia Cyprus Czech RepublicDenmark Estonia FinlandFrance Georgia Germany Greece Hungary Iceland IrelandIsrael Italy Kazakhstan KyrgyzstanLatvia LithuaniaLuxembourg Macedonia Malta MoldovaMonaco Netherlands Norway Poland Portugal RomaniaRussiaSerbia SlovakiaSlovenia Spain Sweden SwitzerlandTajikistanTurkey Ukraine United Kingdom Uzbekistan

EUROPA DONNA Member Countries Albania Tel: +355 69 35 71 071 albania-breastcancer@hotmail.com

Austria Tel: +43 664 1000 736 office@miriamstrauss.at

Belarus Tel: +375 172 63 6615 tomsserzhan@mail.ru

Belgium Tel: +32 2 779 52 21 europadonna@fastmail.fm

Bulgaria Tel: +359 888 006560 eudonnabg@abv.bg

Croatia Tel: +385 1 234 3153 europa-donna-croatia@zg.t-com.hr

Cyprus Tel: +357 22 490 849 info@europadonna.com.cy

Czech Republic Tel: +420 222 733 733 aliance@breastcancer.cz

Denmark Tel: +45 21 49 31 75 jettebjerrum@mail.dk

Estonia Tel: +372 6172 341 tiiu.tigane@regionaalhaigla.ee

Finland Tel: +358 50 3590 382 raija.a.ruotsalainen@gmail.com

France Tel: +33 1 44 30 07 66 www.europadonna.fr

Georgia Tel: +995 32 377 110 nin_ka@hotmail.com

Germany TBD

Greece Tel: +30 210 4181566 europadonnahellas@europadonnahellas.gr

EUROPA DONNA gratefully acknowledges

for their support

Piazza Amendola, 320149 MilanItalyTel. +39 02 3659 2280Fax. +39 02 3659 2284Email: info@europadonna.orgwww.europadonna.orgwww.breasthealthday.org

Hungary Tel: +36 56 240 181 rakszov@enternet.hu

Iceland Tel: +35 4 564 1908 samhjalp@krabb.is

Ireland Tel: +353 86 8504058 info@europadonnaireland.ie

Israel Tel: +972 3 571 9584 miriziv@inter.net.il

Italy Tel: +39 02 85464527 segreteria@europadonna.it

Kazakhstan Tel: +73 27 295 29 32 healthasiakz@mail.ru

Kyrgyzstan Tel: +996 312 93 55 19 sabyrbekova2011@gmail.com

Latvia Tel: +371 26328286 europadonna@dzivibaskoks.lv

Lithuania Tel: +370 68686985 e.umbrasaite@gmail.com

Luxembourg Tel: +352 836748 marie.josee.relax@gmail.com

Macedonia Tel: +389 2 3224767 info@borka.org.mk

Malta Tel: +356 2141 4849 info@europadonnamalta.org.mt

Moldova Tel: +373 22 73 53 32 sofroni@yandex.ru

Monaco Tel: +377 9205 28 88 adelinegarino@libello.com

The Netherlands Tel: +31 23 526 37 69 ad_en_eaj_verschuur@planet. nl

Norway Tel: +47 45613784 trinemellem@gmail.com

Poland Tel: +48 76 862 7499 polskieforum@europadonna.org.pl

Portugal Tel: + 351 289 359 516 beaseq@gmail.com

Romania Tel: +40 21 212 0212 contact@fundatiarenaste rea.ro

Russia Tel: +7 812 510 2739 nadegdartor@mail.ru

Serbia Tel: +381 11 233 4313 saimar@yubc.net

Slovakia Tel: +421 915 064 924 slovakia@europadonna.sk

Slovenia Tel: +386 1 231 21 01 europadonna@europadonna-zdruzenje.si

Spain Tel: +34 649922337 r.b.menorca@gmail.com

Sweden Tel: +46 8 546 40 532 elizabeth.bergsten-nordstrom@bro.org.se

Switzerland Tel: +41 31 389 92 62 zentralsekretariat@europadonna.ch

Tajikistan Tel: +992 918 489080 avesto@mail.ru

Turkey Tel: +90 212 2404909 violetaroyo@hotmail.com

Ukraine Tel: +38 044 596 50 99 maistruk@rhr.org.ua

United Kingdom Tel: +44 208 380 9090 margaret.spittle@aol.com

Uzbekistan Tel: +998 97 2392958 2 eduzbekistan@mail.ru

Head Office:Susan Knox, Executive DirectorKaren Benn, Policy OfficerBarbara Klein, Communications OfficerDaniela Pirisi, Admin/Events OfficerPaige Robinson, Development Officer

This publication arises from the 2011 Work Plan of EUROPA DONNA which has received funding from the European Union, in the framework of the Health Programme. The Executive Agency is not responsible for any use that may be made of the information contained herein.

ED_Membership Brochure_2012.indd 1 08/02/12 16:31

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 20126

COLLABORATION AND NETWORKINg

EUROPA DONNA remains active in seeing that politicians and members of the European Parliament (MEPs) understand the needs and issues of women with breast cancer.

◗ Meeting with the European Commission’s Joint Research Centre on the accreditation of breast services

In June 2012 our Executive Director, Susan Knox, and Head of Policy/Public Affairs, Karen Benn, attended a meeting with the Joint Research Centre (JRC), the in-house science service arm of the European Commission, which provides science advice to EU policy. The meeting was to discuss the European Accreditation project for breast cancer services. As requested in EU legislation (Council conclusions on reducing the burden of cancer 10-06-2008), JRC plans to implement a voluntary accreditation scheme based on an EU protocol, which includes all stages of breast cancer care, from screen-ing to follow-up, and which aims to put the patient at the centre of the process and to harmonise the quality of services delivered, independently of how they are organised.

◗ Breast Health Day Information Day at the European Parliament

On 10 October we held our annual Breast Health Day Information event at the European Parliament in collabo-ration with Nessa Childers, MEP. The aim was to spread the Breast Health Day message “Make Good Choices for your Breast Health” to parliamentarians and other policy-mak-ers. At an information stand decorated with posters, repre-sentatives of our Head Office and ED Belgium distributed flyers to MEPs to raise awareness of the important steps that can be taken to prevent breast cancer later in life. One of the ultimate goals of this event is to have the European Parliament declare 15 October to be Breast Health Day.

◗ Breast Health Day presentation at the European Parliament conference on the role of physical activity in the fight against breast cancer

Dr. Birgit Carly from our Belgium forum presented the Breast Health Day campaign at the conference “Physical Activity: A Useful Tool in the Fight Against Breast Cancer in Europe”. Held in French at the European Parliament in Brussels on 4 December 2012, the conference was organised by Sport and Citizenship within the framework of the European Union’s Europe for Citizens Programme. The conference aimed to increase awareness among the European institutions of the benefits of physical activity in the population, and particu-larly in the fight against breast cancer, and to call upon European decision-makers to launch a wide-scale cam-paign on the topic. Since BHD is a fitting example of such a campaign, Dr. Carly was invited to give an overview of its history, the media outreach programme and the impressive activities undertaken in ED member countries.

◗ European Partnership for Action Against Cancer (EPAAC)

We are a collaborating partner in two of the European Commission’s EPAAC Work Packages, WP5 Prevention and WP7 Healthcare. In June, our Executive Director, Susan Knox, gave a presentation about Breast Health Day to the Open

Forum meeting of EPAAC under the auspices of the WP5 Health Promotion and Prevention work package. The Open Forum is held annually and brings together all the partners in EPAAC. In September, Karen Benn attended the Advisory Council meeting of WP5 in Dublin. The aim of this meeting is to get an overview of European Cancer Leagues, EU and Irish priorities in cancer prevention and to provide advice for the organisation of the next European Week Against Cancer official conference taking place in Dublin in 2013.

◗ AURORA Project CollaborationEUROPA DONNA was asked by the European Commission’s DG SANCO to be an adviser to the AURORA Cervical Screening Project, which is an EU-funded cervical screening project working with hard-to-reach populations in coun-tries where screening is not yet fully rolled out. Our Head of Policy/Public Affairs, Karen Benn, represents ED on this Advisory Board. She participated in a meeting in Tallinn by teleconference, giving input on the development of advo-cacy training modules for both practitioners and advocates.

◗ European Patient Forum Annual General Meeting and Conference

In April, our Head of Policy/Public Affairs, Karen Benn, at-tended the European Patient Forum (EPF)’s Annual General Meeting and seminar. The topic of the seminar was the EPF’s strategic plan for the next 5 years and it gathered EPF members’ input on its strategic direction via plenary sessions and workshops. Ms. Benn moderated two such workshops for EPF. She will also be part of a reference panel that EPF has formed to review its evaluation processes for its 2012 EU Operating Grant.

◗ Health Technology Assessment (HTA) workshopAn International Union Against Cancer and London School of Economics (UICC-LSE) Workshop for Cancer Patient Organisations was held in Montreal, Canada, at the end of August. Our Executive Director, Susan Knox, represented ED at this key meeting which outlined all the regulations and country involvement in HTA so far. The 2-day work-shop was led by the LSE’s Panos Kanavos. The meeting ex-plored the ways in which HTA is conducted, the variations in the decision-making process country to county, and how advocates might have an impact on this in the future.

◗ Clinical/Commercial Payer ForumOur Executive Director, Susan Knox, participated in the Clinical/Commercial Payer Forum held in Zurich, Switzerland, in May. She presented the patient perspective at a roundtable along with representatives of the European Organisation for Research and Treatment of Cancer (EORTC), the pharmaceutical industry and the European Network for Health Technology Assessment (EUnetHTA) to discuss future research schemes and funding/reimburse-ment issues. ED pointed out that we need to ensure that patient advocates are involved in the HTA process.

Parliamentary and Policy Activities

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 2012 7

COMMITTEE MEMBERSHIP AND ACTIvITIESDuring 2012 EUROPA DONNA served on the following committees:

Clinical Trials ◗  BIG Scientific Committee ◗  MINDACT Steering Committee ◗  ALLTO Steering Committee

During 2012 ED participated in the following organisational activities:

Policy ◗  European Parliament Information Day for Breast Health Day ◗  European Patients’ Forum ◗  European Public Health Alliance ◗  ECCO − Patient Advisory Council ◗  European Partnership for Action Against Cancer (EPAAC) Open Forum ◗  European Partnership for Action Against Cancer (EPAAC) WP5 Prevention Meeting

Conferences ◗  EBCC8 March 2012 ◗  EUROPA DONNA Advocacy Leader Conference ◗  EUROPA DONNA Breast Cancer Advocacy Training Course ◗  ECCO 16-ESMO 36 Multidisciplinary Congress ◗  35th Annual San Antonio Breast Cancer Symposium ◗  ECCO Oncopolicy forum October 2012

Other Meetings ◗  EBCC-9 Organising Committee ◗  EBCC-9 Executive Scientific Committee ◗  Skeletal Care Academy ◗  International Experience Exchange for Patient Organisations ◗  VZW–BCWG Breast Cancer Working Group ◗  AURORA Cervical Screening Project ◗  Metastatic Patient Group Forum ◗  POLE-ESO Programme for Oncology Leaders ◗  International Capacity Building Alliance Workshop ◗  EURAMA DONNA ◗  Advocacy Committee for ABC2 ◗  UICC-LSE Workshop for Cancer Patient Organisations ◗  Clinical/Commercial Payer Forum ◗  Patient Advisory Boards

COLLABORATION AND NETWORKINg

In 2012, EUROPA DONNA received its first operating grant from the European Union, in the framework of the Health Programme. The grant covered 60% of expenses associated with core activities of the organisation in 2012, such as our Advocacy Training Course, Information Programme, Forum Support and Advocacy Programme. In March 2012, we submitted a request for renewed funding for 2013 in response to the Executive Agency for Health and Consumers’ (EAHC) 2012 call for proposals under the second programme of Community action in the field of health (2008-2013). In November, the EAHC, acting under powers delegated by the Commission of the European Union, informed us that we had once again been evaluated positively and that EUROPA DONNA would be one of 19 recipients of a generous operating grant in 2013.

We held our Fifth Sponsor Meeting in Vienna on 29 September. Elizabeth Bergsten Nordström, ED President, and Susan Knox, Executive Director, attended and pro-vided an overview on our progress on projects through 2012 and plans for 2013. Representatives of our spon-soring organisations then had the opportunity to discuss these projects in detail and to ask about our involvement in other cancer-related programmes taking place on a European level. We emphasised our commitment to mul-tiple sponsors and transparency as well as diversifying funding.

Development Programme Sponsor Meeting

In addition, ED continues to seek new sponsorship by contacting various foundations and organisations across Europe and the United States.

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 20128

FINANCIALSOur annual financial statement has been prepared by an independent auditor and is posted on our website at www.europadonna.org.

Income and Expenditure Statement 2012

INCOME

Turnover 609,615

Membership dues 14,000

Grants and donations 595,615

Financial Income 7,536

TOTAL INCOME € 617,151

OPERATING EXPENDITURES

Services & Office Expenses 73,087

Administrative overhead 54,376

Fees (audit, legal, insurance) 18,711

Salaries (employees & related costs) 251,279

Activity Expenses 301,109

Publications, websites 84,186

Advocacy Training Course 71,026

Board meetings 12,463

Other meetings 3,946

10th ED Pan-European Conference 915

11th ED Pan-European Conference 69

European Breast Cancer Conference 42,016

Breast Health Day 48,511

Advocacy Leader Conference 37,977

Depreciation & Write-Offs 5,951

Office equipment 5,451

Loss of dues 500

Financial Charges (bank costs) 3,626

Surplus/Loss of the Period (transfer to/from reserves) –17,901

TOTAL EXPENDITURES € 617,151

ASSETS

Net Fixed Assets (Plant machinery and equipment)

13,240

Current Assets 829,753

Trade debtors 109,866

Cash at bank and in hand 514,877

Reserve fund 205,000

TOTAL ASSETS € 842,993

LIABILITIES

Reserve Fund 297,766

Surplus and loss for the year –17,901

Extraordinary reserve 315,667

Creditors 545,227

Amounts payable within 1 year 9,801

Accrued charges and deferred income 535,426

TOTAL LIABILITIES € 842,993

Balance Sheet as of 31 December 2012

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 2012 9

gRANTS AND DONATIONS

ACKNOWLEDgEMENTSEUROPA DONNA wishes to acknowledge and express appreciation for the ongoing support of our Executive Board, our faculty members and scientific advisors for their generous contribution of time and effort on behalf of breast cancer advocacy. We would also like to commend our individual National Fora for their continuing commitment to our common advocacy goals, especially the implementation of the EU guidelines. The strength of our organisation emanates from our National Fora whose ongoing work and efforts are outstanding and become more impressive each year. Finally, on behalf of the entire EUROPA DONNA breast cancer advocacy community, we would like to express our appreciation to the European Union in the framework of the Health Programme for its very generous 2012 grant in support of ED’s Core Programming and to all of our sponsors who have provided us with unrestricted educational grants to carry out our advocacy work on behalf of all of the women of Europe.

EUROPA DONNA gratefully acknowledges the following for their generous support of our advocacy projects and activities:

Over €100,000European Union, in the framework of the Health Programme

€50,000–99,999F. Hoffman-La Roche • GlaxoSmithKline • Novartis • VZW–Breast Cancer Working Group

€20,000–49,999Amgen Europe GmBH • Boehringer Ingelheim • Sanofi-Aventis

€10,000-20,000BIG-Breast International Group

Other ContributionsWe would also like to express our appreciation to Cohn & Wolfe for the provision

of Pro Bono services for Breast Health Day evaluated at €28,000.

To safeguard the totally independent and autonomous voice of EUROPA DONNA on breast cancer issues, we are guided by our Sponsorship Policy in all matters concerning financial support of our work.

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 201210

EUROPA DONNA ExECUTIvE BOARD AND NATIONAL REPRESENTATIvES

AlbaniaDiana MyrtoEmail: albania-breastcancer@hotmail.com

Austria Miriam StraussEmail: office@miriamstrauss.at

BelarusTamara SerzhanEmail: tomsserzhan@mail.ru

BelgiumRita De Coninck Email: europadonna@fastmail.fm

BulgariaMila NenovaEmail: eudonnabg@abv.bg

CroatiaNada KraljevićEmail:europa-donna-croatia@zg.t-com.hr

CyprusStella KyriakidesEmail: info@europadonna.com.cy

Czech RepublicMarta KostrováEmail: aliance@breastcancer.cz

DenmarkJonna YdeEmail: jonna.yde@europadonna.dk

EstoniaTiiu-Liis TiganeEmail: tiiu.tigane@regionaalhaigla.ee

FinlandRaija RuotsalainenEmail: raija.a.ruotsalainen@gmail.com

FranceMartine CastroEmail: martinecastro@gmail.com

GeorgiaNino KartvelishviliEmail: nin_ka@hotmail.com

GermanyTBC

GreeceAlexia Adamis-Korletis Email: alexiaadami@gmail.com

HungaryErna Ganofszky Email: rakszov@enternet.hu

IcelandHrefna IngólfsdottirEmail: hrefna2908@simnet.is

Ireland Dympna Watson Email: info@europadonnaireland.ie

IsraelMiri ZivEmail:miriziv@inter.net.il

ItalyRosanna D’AntonaEmail: segreteria@europadonna.it

KazakhstanNagima PlokhikhEmail: healthasiakz@mail.ru

EUROPA DONNA Executive Board 2012PresidentElizabeth Bergsten NordströmEmail: elizabeth.bergsten-nordstrom@bro.org.se

Vice-PresidentSema ErdemEmail: semae@tr.ibm.com

TreasurerGertrude AbelaEmail: gertrude@highway.com.mt

Past President Bettina BorischEmail: bettina.borisch@unige.ch

MembersRoswitha Britz Email: r.b.menorca@gmail.com

Mojca MiklavčičEmail: mojchka@gmail.com

Antonella MoreoEmail: antonella_moreo@yahoo.it

Ene TombergEmail: Ene.Tomberg@tallinnlv.ee

Nicole Zernik Email: nicolezernik@aol.com

EUROPA DONNA National Representatives 2012

EUROPA DONNA – The European Breast Cancer Coalition / ANNUAL REPORT 2012 11

Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom Belarus Belgique Balgariya Ceská Republika Danmark Deutschland Eesti España France Hellas Hrvatska Ireland Island Israel Italia Kazakhstan Kirgiz Respublikası Kypros Latvija Leituva Luxembourg Makedonija Magyarország Malta Moldova Monaco Nederland Norge Österreich O‘zbekiston Polska Portugal Romania Rossijshaja Federacija Sakartvelo Shqipëri Slovenija Slovensko Srbija Suisse Suomi Sverige Tocikiston Turkiye Ukraïna United Kingdom

EUROPA DONNA National Representatives 2012 (cont)

Kyrgyzstan Taalaigul Sabyrbekova Email: sabyrbekova2011@gmail.com

Latvia Gunita Berke Email: europadonna@dzivibaskoks.lv

Lithuania Erika Umbrasaite Email: e.umbrasaite@gmail.com

Luxembourg Mariette Fischbach Email: mariettefischbach@yahoo.de

Macedonia Biba Dodeva Email: info@borka.org.mk

Malta Doris Fenech Email: info@europadonnamalta.org.mt

Moldova Larisa Sofroni Email: sofroni@yandex.ru

Monaco Adeline Garino Email:adelinegarino@libello.com

The Netherlands Ellen Verschuur Email: ad_en_eaj_verschuur@planet.nl

Norway Kari Eliassen Email: post@brystkreftforeningen.no

Poland Dorota Czudowska Email: polskieforum@europadonna.org.pl

Portugal Amélia Olimpia Pinto Leite Email: europadonna@ligacontracancro.pt

Romania Mihaela Geoană Email: contact@fundatiarenasterea.ro

Russia Nelly Andronova Email: nadegdartor@mail.ru

Serbia Andjelka Majic Email: saimar@yubc.net

Slovakia Andrea Földesová Email: slovakia@europadonna.sk

Slovenia Mojca Senčar Email: europadonna@ europadonna-zdruzenje.si

Spain Mercedes Cano Email: chedeska@hotmail.com

Sweden Elizabeth Bergsten Nordström Email: elizabeth.bergsten-nordstrom@bro.org.se

Switzerland Donatella Corbat Email: zentralsekretariat@europadonna.ch

Tajikistan Firuza Abdullaeva Email: avesto@mail.ru

Turkey Violet Aroyo Email: violetaroyo@hotmail.com

Ukraine Galina Maistruk Email: maistruk@rhr.org.ua

United Kingdom Margaret Spittle Email: edukforum@gmail.com

Uzbekistan Shakhnoza Umarova Email: eduzbekistan@mail.ru

©2013 EUROPA DONNA – The European Breast Cancer Coalition. All rights reserved.

This report arises from the 2012 Work Plan of EUROPA DONNA which has received funding from the European Union, in the framework of the Health Programme. The Executive Agency for Health and Consumers is not responsible for any use that may be made of the information contained herein.

EUROPA DONNA – The European Breast Cancer Coalition Piazza Amendola, 320149 MilanItalyTel: +39 02 3659 2280Fax: +39 02 3659 2284Email: info@europadonna.orgWebsites: www.europadonna.org www.breasthealthday.org www.facebook.com/EuropaDonna http://twitter.com/BreastHealthDay www.youtube.com/BreastHealthDay