Free Independent Health Records

Adrian Gropper, MDBerkman Klein Center

January 26, 2017

Great-Grandma is 91● Healthy, but demented● In her condo with a live-in caregiver● I’m 200 miles away● I need to monitor her health encounters● A new doctor...● … where’s the active medication list?

Agenda

● Fairness● Person-centered Solution● Self-sovereign Tech● Policy Questions● Next Steps

Free Independent Health Records

http://thedatamap.org

Baran, Paul. “On Distributed communications: I. Introduction to distributed communications netowrks” http://www.rand.org/content/dam/rand/pubs/research_memoranda/2006/RM3420.pdf

● Distribute access tokens, not policies

● Self-sovereign nodes for self-sovereign persons

● Router○ Authorization Server / Policy Store○ FreedomBox○ Personal Data Store○ Blockchain Node

● Mobile Client○ Browser ○ Secure Element○ Biometrics○ Blockchain Client

● Things○ Implants○ Wearables○ IoT

Free Independent Health Records● Aggregated● Curated● Authoritative● Legal

○ Non-repudiable signatures○ (Blockchain) Timestamps○ Retention

● Mandated Registries○ Prescription Drug Monitoring Programs○ Infectious Disease○ All Insurance Claims○ Research and Quality

Build on top of APIs from the startSarah Inteman/John Kiehl Physics meets Metaphysics

Self-sovereign Tech Policy

● Fairness to the individual

● Curation

● Independent decision support at the point of care

● Digital Divide

○ Hardware (Smartphone, Router)

○ Identity (Undocumented)

Call to Action

● Educate Professions○ Legal: Sedona Conference○ Medical: Self-sovereign Identity○ Medical Society: Physician Directory

● Self-Sovereign Technology○ Add Authorization Server to FreedomBox○ Support Communities○ Business Model

● Visit hieofone.org

Thank You!

June 1-2 at Georgetown Law Center - Free and open to the public.