leukaemia & lymphoma research david henderson. where we started

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Leukaemia & Lymphoma Research David Henderson

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Page 1: Leukaemia & Lymphoma Research David Henderson. Where we started

Leukaemia & Lymphoma Research

David Henderson

Page 2: Leukaemia & Lymphoma Research David Henderson. Where we started

Where we started

Page 3: Leukaemia & Lymphoma Research David Henderson. Where we started

Our mission

1. We stop people dying from blood cancerAnything short of 100% survival is unacceptable. We’ll work until no one dies from blood cancer again.

2. We make patients’ lives betterPeople with blood cancer should be able to live the lives they’re given. We’ll work to improve patients’ quality of life until blood cancer no longer has an impact.

3. We stop people getting blood cancer in the first placeIf there are ways to prevent blood cancer, we’ll find them.We’ll work to uncover the answers that stop blood cancer happening.

Page 4: Leukaemia & Lymphoma Research David Henderson. Where we started

What we do:

Research

Patient Services

Policy & Public Affairs

Understanding Patient Need

Raise funds

Page 5: Leukaemia & Lymphoma Research David Henderson. Where we started

Patient Services: We’re here with you

For patients. For carers.For anyone affected by blood cancer.

We provide a range of patient services dedicated to supporting and improving the lives of patients

Page 6: Leukaemia & Lymphoma Research David Henderson. Where we started

Information

– Patient, families, carers– Available online and booklet forms– Currently updating and refreshing• Core disease booklets• Key support information (‘My Diary’)

– Created for the patient: so any particular areas needed then do let us know

Page 7: Leukaemia & Lymphoma Research David Henderson. Where we started

Online Patient Support

Page 8: Leukaemia & Lymphoma Research David Henderson. Where we started

Support and engagement

– Patient Events, Email, Social Media, Telephone

– Clinicians and nurse specialists

–Work with policy & public affairs team

– Support Patient Need research programme

Page 9: Leukaemia & Lymphoma Research David Henderson. Where we started

Prioritising Patient Need:Putting patients at the heart

Page 10: Leukaemia & Lymphoma Research David Henderson. Where we started

What this enables

Page 11: Leukaemia & Lymphoma Research David Henderson. Where we started

What we’ve been up to & how you can get involved

• Interrogating data and research• Patient need survey• Focus groups across the UK• Interviews 1-2-1 with leading professionals

• Speak to me today or visit our website

Page 12: Leukaemia & Lymphoma Research David Henderson. Where we started

Thank you