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Quality of Life

HOT TOPICS IN GERIATRIC ONCOLOGY

Stefania MigliuoloRelations with the scientific community

European Breast Cancer Coalition representing the interestsof European women regarding breast cancer to local and

national authorities as well as to institutions of the European Union.

� 1994 – establishment of Europa Donna, inspired by Umberto Veronesi

� 2016 – 47 member countries

EUROPA DONNA

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Doctors

PublicAuthorities

Regulators

Media

OpinionLeaders

PatientAdvocacyCoalition

EUROPA DONNA ITALIA: CIRCULAR INFLUENCES EUROPA DONNA ITALIA POLICY AGENDA

The main goals

� To promote the organization of multidisciplinary breast centers (Breast Unit) throughout the country, in accordance with

national regulations and European recommendations.

� To assure in all Regions effective access to personalized

mammography screening programs, based on the individual risk factors, also for women aged over 70.

� For metastatic breast cancer patients: access to the most innovative treatments, more information and support from

doctors and health system.

Senonetwork brings together Italian Btreast Units, Scientific Societies fully

involved in breast cancer’s diagnosis and treatment, and Europa Donna Italia. Senonetwork acts as scientific chosen speaker of the Ministry of Health in order to promote the development of Breast Units.

Coordinator

Luigi Cataliotti

Scientific Societies Representatives:

Ass.ne Italiana di Oncologia Medica (AIOM) - Fabio Puglisi

Ass.ne Italiana Radioterapia Oncologica (AIRO) – Cristiana Vidali

Ass.ne Nazionale Italiana Senologi Chirurghi (A.N.I.S.C.) - Roberto Murgo

Gruppo Italiano Screening Mammografico (GISMa) - Gianni Saguatti

Società Italiana di Anatomia Patologica (SIAPEC-IAP) - Anna Sapino

Società Italiana di Radiologia Medica (SIRM) - Pietro Panizza

Europa Donna Italia

Rosanna D’Antona

European Society of Breast Cancer Specialists

Lorenza Marotti

The partnership with SENONETWORKEuropa Donna Italia - the Regional Network➢ Direct and continuing relationships

with women living in different Italian regions. ➢ Access to up-to-date information

which lead to female population’s empowerment➢ A complete overview of the state-of-the-art, underlying problems and

difficulties but also example of

excellence.

Europa Donna Italia has affiliated member Associations in 14 Regions. Representative of thousands of women all the Country,

they ensure:

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Our commitment for Quality:

Quality of careQuality of life

THE BREAST UNIT

A Breast Unit is a fully equipped, quality assured, dedicated breast

center that provides competent and comprehensive care

It is associated with a better perception of the patient's quality of life thanks to:➢ the action and support of the multidisciplinary team ➢ a personalized care path

The therapeutic-care model of the Breast Unit

is nowadays considered

a model for the approach and treatment to other tumours

THE THERAPEUTIC-CARE MODELOF THE BREAST UNIT

FOR A BETTER QUALITY OF LIFE

The elderly cancer patient, who often suffers from co-morbidities,can receive special benefits from it

… all women should have access to fully equipped multidisciplinary and multiprofessional

breast clinics based on populationsof around 250,000.

Florence Statement1°Joint Breast Cancer

Conference 1998Cataliotti et al Eur J Cancer, 1999

BU GUIDELINES“The requirements of a specialist breast unit”

EUROPEAN RESOLUTION 2003

EUROPEAN RESOLUTION 2006

“We found that the introduction of teams providing multidisciplinary care for the treatment of breast cancer

was associated with 18% lower breast cancer mortality at five years”

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Geneticist

Psycho -

oncologist

Data manager

Patient Advocacy

Technician

Physiotherapist

Surgeon

Medical Oncologist

Pathologist

Radiotherapist

Radiologist

Breast care Nurse

Breast UnitMultidisciplinary team

Europa Donna Italia launched an

awareness-raising journey promoting

Breast Units in each Region, involving

local Institutions, scientific community

and Associations in public meetings.

Lombardia

June 2014

Emilia-Romagna

May 2015Liguria

November 2015

Campania

October 2015

Piemonte

February 2016

Sicilia

October 2014

Calabria

October 2016The main tasks of the Association within the B.U. are:� facilitate the physical and psychological recovery of the patient during and

after illness

� assist with information and advice� evaluate patients satisfaction to control the perceived quality� participate in quality checks of paths, structures, technologies by establishing

evaluation indicators� interact with regional and national Institutions to ask for and ensure equal

diagnosis and treatment throughout the national territory.

Chapter 5

Active participation of citizens, patients and volunteers

Document of the Health Ministry

defining specific

organizational process

of the breast centers network

The Patient Association’s role in the Breast Unit

The training Programme for Patient Association in the BU

Europa Donna Italia developed a training and education program for Patient Advocates

operating within the Breast Units. Stefania MigliuoloRelations with the scientific community