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The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability Forum

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Page 1: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

The role of NGOs and organizations representing persons with

disabilities, tailored policy planning and awareness rising

Giampiero GriffoEuropean Disability Forum

Page 3: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability
Page 4: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability
Page 5: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability
Page 6: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability
Page 7: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Definition of disaster• UN-ISDR definition of ‘disaster’ “• A disaster is a function of the risk process. It results from the

combination of hazards, condition of vulnerability and insufficient capacity or measures to reduce the potential negative consequences of risk”

• the EU civil protection financial instrument where emergency means

• “any situation which has or may have an adverse impact on people, the environment or

• property”;

Page 8: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

(e) Recognizing that disability is an evolving concepte and that disability results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others

Page 9: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Persons with disabilitiesare expert in resilience issue

All days we are resilient

Page 10: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

10

New York UN 13.12.2006GA approve Convention on the right

of PwD: higher recognition of the rights of pwd

Page 11: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

158 States has signed the Convention 92 States has signed the Optional Protocol

151 has ratified the Convention (77%) 85 has ratified the Optional Protocol (44%)

Page 12: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES

• Article 11 - Situations of risk and humanitarian emergencies• States Parties shall take, in accordance with their obligations

under international law, including international humanitarian law and international human rights law, all necessary measures to ensure the protection and safety of persons with disabilities in situations of risk, including situations of armed conflict, humanitarian emergencies and the occurrence of natural disasters.

Page 13: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Global report on Disability (WHO 2012)

1 billions of Persons withDisabilities onthe hearth (15%of world population)

Page 14: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

IDMC (Internal desplacement monitoring center) 2013

million• Displaced persons for natural disaster 22

• Displaced persons for war 33,2

• Total 55,3 Who need humanitarian aid

• 15% is about 8,3 milioni of persons with disabilities

• http://www.internal-displacement.org/

Page 15: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Safe inclusive rules

• Society recognize to PwD the rights to come in all building and public and private spaces, but not recognize the rights to exit in safe condition

• Including PwD in the rules of safety and emergency, and in the training of the competent personel

Page 16: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

DISABILITY IS NOT INCLUDE IN THE TARGET OF EMERGENCY AND HUMANITARIAN AIDS

Poor research on disability related to natural or man made disasters

Page 17: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability
Page 18: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Humanitarian approach

Human rights approach

Page 19: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Humanitarian approach:

• Speed intervention has produced competence of military bodies or charitable organisation (Army, Red cross, etc.)

• Military culture – limitation of losses• Charitable vision – beneficiary are not able• Triage approach

Page 20: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Humanitarian approach:

• Two time approach- First aids (food, health and housing)- Second action for other needs

Page 21: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Accessible camps

Page 22: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Dietary needs satisfy

Page 23: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

From the Absence of attention of particular

hygienic or healthy needs

Page 24: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

To accessible toilet

Page 25: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Human rights approach

• Respect of dignity of person (equal treatment and non discrimination)

• Attention on rights and opportunities for all (Respect CRPD Principles)

• Focus on empowerment of person and community (self-determination ad inclusion)

Page 26: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Involve PwD in all community activities

Page 27: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Community based Rehabilitation - CBR

• CBR is a strategy of local community development, based on respect of Human rights of all members, organizing habilitation and rehabilitation services to garantee equal opportunity and social inclusion of PwD

• CBR is building by an inclusive development strategy, with direct participation of PwD, their families and all member of communities, removing barriers and obstacles and deleting discrimination in all society and creating adequate services and programmes particular in the area of health, education, employment and social services.

Page 28: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

GOAL: HUMAN RIGHTS - SOCIO-ECONOMIC DEVELOPMENT - POVERTYERTY REDUCTION

COMMUNITY BASED REHABILITATION (CBR)

HEALTH

PROMOTION

PREVENTION

PRIMARY & SECONDARY

CARE

TERTIARY CARE/REHABILITATION

EDUCATION

EARLY CHILDHOOD

DEVELOPMENT

NON-FORMAL

FORMAL INCLUDING PRIMARY

SECONDARY AND HIGHER

LIVELIHOOD

SKILLSDEVELOPMENT

INCOME GENERATION

FINANCIAL SERVICES

EMPLOYMENT

EMPOWERMENT

SELF-HELP GROUPS

DISABLED PEOPLE'S

ORGANIZATIONS

SOCIALMOBILISATION

POLITICAL LOBBYING

SOCIAL

LEGALPROTECTION

CULTURERELIGION &

ARTS

SPORTS RECREATION &

LEISURE

RELATIONSHIPMARRIAGE &

FAMILY

ASSISTIVEDEVICES

LIFE-LONG LEARNING

SOCIAL PROTECTION

LANGUAGE & COMMUNICATION

PERSONAL ASSISTANCE

PRINCIPLES: PARTICIPATION ~ INCLUSION ~ SUSTAINIBILITY ~ SELF ADVOCACY

Page 29: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

INVOLVEMENT OF HEALTH SERVICES AND COMMUNITIES (DPO) IN ATTENDANCE OF PWD

Project Disability and emergency financed by Italian cooperation and managed by AIFO in post-tsunami in Indonesia

Page 30: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Working with the companies that produce tools for pwd

Page 31: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Some appropriate practices

• Istitutional• Technical• Methodological• Knowledge• Political

Page 32: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

HUMANITARIAN AID AND EMERGENCY SITUATIONS INCLUDING PERSONSWITH DISABILITIES

Italian Development Cooperation Disability Action Plan

Page 33: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Italian fire department (Interiors Ministry) elaborate Guidelines on rescue of pwd in emergency situation (2002) and specific

technical suggestion for the first aids (2003)

Same rules or good exist in various EU countries (Croatia, Czech republic, France,

Greece, Latvia, Netherland, North Ireland, …)

Page 34: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Emprouve staff competences in specific disability issues

Page 35: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Sergent Vincent DorivalRsponsible Mission handicap

Brigade sapeurs-pompiers Paris

Page 36: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Disability inclusiveDisaster risk ManageMent Voices from the field & good practices CBM and DDR

Disability Inclusive Disaster Risk Reduction: Addressing the Need of One Tenth Population of BangladeshIslamic Relief Bangladesh | Climate & Disaster Resilience

Participatory learning approaches forresilience: Bringing conflict sensitivity,disaster risk reduction, and climatechange adaptation togetherWorld Vision

Disability and disasters: The importance of an inclusive approach to vulnerability and social capitalSightsavers

Disability Inclusive CommunityBased Disaster Risk ManagementA toolkit for practice in South AsiaHandicap International

Emergency guidePreparednes for people with disabilities/special needsCanada Public safety

Disaster Preparedness and the Deaf Community For the Deaf, Hard of Hearing and Latened DeafAmerican red cross and NTID

Guidance Note on Disability and Emergency Risk Management for HealthCBM WHO UNICEF UNISDR IFRCRCS IOM

Page 37: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Take in account the disomogeneous condition of persons (the human

diversity):

Person with autism (Fondazione Bambini e Autismo ONLUS

www.bambinieautismo.org )

Page 38: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

“VERONA CHARTER”on the rescue of persons with disabilities in case of disasters

Declaration of the participants in theConsensus Conference held in Verona

on 8-9 November 2007(project financed by EU)

Page 39: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Research on disability related to natural or manmade disaster

• Research in post hearthquake in Haiti (financed by FIRAH)

• Research after Typhoon in Philippine (WHO)

• Report on persons with disabilities in the Kurdistan camps in Iraq

Page 40: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Studies and research

• Collect data and information• DISABILITY can and should enter as an indicator in emergency

monitoring and relief plannig.

Page 41: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

European strategy on disability (2010-2020)

• Point 8 – External action• (…) raise awareness of the UN Convention and the needs of people

with disabilities, including accessibility, in the area of emergency and humanitarian aid;

Key action for point 8• Ensure that the specific needs of persons with disabilities,

including those who are disabled as a consequence of natural and man-made disasters, are properly assessed and addressed in the area of emergency and humanitarian aid outside the EU

Page 42: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

EU initiative

• The EU is the world’s biggest donor of humanitarian aid. Together, Member States and

EU institutions contribute more than half of official global humanitarian aid.

• Important including in preparedeness the risk of disaster Initiative on civil protection in EU and in humanitarian aids too in the EU position for UN

Sendai city Conference (march 2015)

Page 43: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Inclusion is effective onlywith direct participation of

excluded and discriminated Persons

Page 44: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

UN Convention on the rights of PwDArticle 4, par. 3 – General Obligations

• 3. In the development and implementation of legislation and policies to implement the present Convention, and in other decision-making processes concerning issues relating to persons with disabilities, States Parties shall closely consult with and actively involve persons with disabilities, including children with disabilities, through their representative organizations.

Page 45: The role of NGOs and organizations representing persons with disabilities, tailored policy planning and awareness rising Giampiero Griffo European Disability

Nothing about uswithout us

We are really experts

on our own life

Hamburg declaration

“enable people and communities to take control of their destiny and society”