van der steen jenny
TRANSCRIPT
![Page 1: Van Der Steen Jenny](https://reader031.vdocuments.pub/reader031/viewer/2022021319/577dacb41a28ab223f8e4982/html5/thumbnails/1.jpg)
8/14/2019 Van Der Steen Jenny
http://slidepdf.com/reader/full/van-der-steen-jenny 1/2
ABSTRACT FORM
Presenting author
Email:
Phone
Mobile phone
Please underline the most appropriate category for your abstract
• Pain and other symptoms
• Palliative care for cancer patients
• Palliative care for non cancer
patients
• Paediatric palliative care
• Palliative care for the elderly
• The actors of palliative care
• Latest on drugs
• Pain
• Illness and suffering through
media
• Marginalisation and social stigma
at the end of life
• Palliative care advocacy projects
• Prognosis and diagnosis
communication in
different cultures
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to
metropolies
• Space, light and gardens for the
terminally ill patient
• End-of-life ethics
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support• Volunteering in palliative care
Research in end of life with dementia: pitfalls and possibilities for quantitative studies
Author: Jenny Van der Steen
Studying end of life in dementia is challenging because of the frailty of the population,additional cognitive problems and difficulty of assessing when patients enter the terminal phase.Because of its potential benefit to large numbers of future patients, over recent years, researchhas expanded rapidly. Quantitative studies, including observational studies which are frequentlyethically appropriate, are helpful to increase the desired evidence base of effective treatment andend-of-life care in dementia patients. They are not invasive, and long-term care institutions canhost longitudinal studies with strong designs. Equalizing instruments across studies allows forcross-national comparison of studies providing additional benefits. Several methodologicalchallenges need to be addressed, including: definition of the terminal phase, use of specific validand reliable and preferably common assessment instruments, adequate adjustment in the analytic
phase, and careful interpretation of results in light of a lack of standards of care. Examples ofhow these challenges can be addressed will be presented, such as how to measure discomfort and
symptom burden, and how to adjust for confounding in assessing associations between treatmentand outcome in observational studies.
Session: Training & Research in palliative care
Chair: Dott. Franco Toscani
Antea Worldwide Palliative Care ConferenceRome, 12-14 November 2008
Jenny Van der Steen
![Page 2: Van Der Steen Jenny](https://reader031.vdocuments.pub/reader031/viewer/2022021319/577dacb41a28ab223f8e4982/html5/thumbnails/2.jpg)
8/14/2019 Van Der Steen Jenny
http://slidepdf.com/reader/full/van-der-steen-jenny 2/2
• Rehabilitation in palliative care
• Palliative care quality indicators
• Neurology in palliative care