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Advocating for ChangePresenters:• Gary Mendell, MBA, Founder and CEO, Shatterproof• Kim Manlove, MS, AB, Director, Indiana Addictions

Issues Coalition

Advocacy Track

Moderator: Wendy Spencer, CEO, Corporation for National and Community Service

Disclosures

Kim Manlove, MS, AB; Gary Mendell, MBA; and Wendy Spencer have disclosed no relevant, real, or apparent personal or professional financial relationships with proprietary entities that produce healthcare goods and services.

Disclosures

• All planners/managers hereby state that they or their spouse/life partner do not have any financial relationships or relationships to products or devices with any commercial interest related to the content of this activity of any amount during the past 12 months.

• The following planners/managers have the following to disclose:– John J. Dreyzehner, MD, MPH, FACOEM – Ownership interest:

Starfish Health (spouse)– Robert DuPont – Employment: Bensinger, DuPont &

Associates-Prescription Drug Research Center

Learning Objectives

1. Advocate for state laws that mandate usage of state PDMPs.

2. Explain strategies to influence passage of legislation.

3. Describe how people in recovery from addiction can become advocates through recovery messaging training.

4. Provide accurate and appropriate counsel as part of the treatment team.

Advocating for ChangeGary Mendell, Shatterproof

Our Story

Overdose Epidemic

This Epidemic Caused By Overprescribing of Opioids

The Bigger SolutionsType Population Stage of

InterventionSolutions

Those Not Addicted 320MMFuture Generations

Prevention PDMPPrescriber Guidelines

Those with an OUD 3MM Treatment Prescriber GuidelinesMAT

PDMP

Those with an OUD 3MM Rescue Good SamaritanNaloxone

Legislative Accomplishments

Legislative Accomplishments

•Wisconsin (Mandating use of their PDMP, February ‘16)

•Connecticut (Expanded access to Naloxone, Mandating use of PDMP

and Mandating prescriber education, June ’15)

•Florida (Expanded access to Naloxone, May ’15)

•Kentucky (Expanded access to Naloxone and No-Charge Good

Samaritan Protection, March ’15)

•West Virginia (Expanded Naloxone, February ’15)

•Pennsylvania (Expanded access to Naloxone, September ‘14)

•Delaware (Expanded access to Naloxone, August ‘14)

Today’s Focus: PDMP’s• State-run databases that collect data regarding controlled

substance prescriptions

• Doctors review data prior to writing Rx to prevent lethal combinations

• PDMP’s key state-level interventions:– improve opioid prescribing– inform clinical practice– protect patients at risk

Key Legislative Components• Query Prior to Prescribing Schedule II, II & IV Drugs• Dispensers Submit Data within 24 hours of dispensing • Authorized Recipients• Delegates• Proactive Analysis and Issuance of Unsolicited Reports• De-Identified Information• Interstate Sharing• Evaluation• Data as Early Warning System for Communities

2016 State Initiatives

2016 Advocacy Resources

• Quarterback Legislation Firm –

• State Based Lobbyist – Marc Burgat

• State Based PR Firm –

• Shatterproof Ambassadors, Influencers

• Fact Sheet, Case Study

CA Key Legislative Components• Query Prior to Prescribing Schedule II, II & IV Drugs• Dispensers Submit Data within 24 hours of dispensing • Authorized Recipients• Delegates• Proactive Analysis and Issuance of Unsolicited Reports• De-Identified Information• Interstate Sharing• Evaluation• Data as Early Warning System for Communities

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California had the largest number ofoverdose deaths of any state in the nation in 2014, 4,395. (CDC)California had the largest number of overdose deaths of any state in the nation in 2014, 4,395. (CDC)

In states without a legislative mandate to check the PDMP before prescribing a controlled substance, ~86% of prescriptions are written for an opioid without ever checking the patient’s prescription history. (Brandeis University PDMP Center of Excellence)

States with mandatory querying see lower levels of opioid prescribing. In 2013, several months after rolling out its new PDMP software, New York passed legislation consistent with the recommendations in the box below. In the first year, doctor shopping decreased 75%, the number of doses of opioids dispensed decreased by 10% and the number of buprenorphine prescriptions (a drug used to treat opioid addiction) increased by 15%. (See New York Case Study) Similar results have been achieved in several other states. (Brandeis University PDMP Center of Excellence).

Progress in California

Senator Lara (D-Los Angeles) has taken leadership of this issue and introduced legislation that would require physician PDMP reporting.

The bill SB482:• Mandates that the prescriber consults CURES before prescribing a Schedule II or III controlled substance for the first time and again annually if the substance remains part of the treatment.• Stipulates that failure to comply is subject to disciplinary action by the appropriate licensing Board.

We recommend this bill should also include these requirements:• Expand mandatory query requirements to include Schedule II through IV substances.• Require prescribers to query the system upon every prescription rather than annually.• Require pharmacists to submit prescription information to the PDMP within 24 hours of dispensing (currently 7 days in CA).• Publish findings on statewide opioid overdose data to ascertain ways to further reduce overdoses.

How many states have these provisions?

gmendell@shatterproof.org

How Can You Help?

Together, We Can Save Lives

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Our Stories Of Recovery From Addiction Contain Incredible Power

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William Cope Moyers of Hazelden Treatment CenterWhy is it important

to share stories of Recovery

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Our Goals • Learning about messaging

• Learning how to tell your recovery story to your friends and family

• Learning how to use recovery messages in all parts of your life, including representing the organized recovery community in the media and other public places

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Recovery Community

People in recovery from alcohol and other drug addiction, their family members, friends and allies

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Faces & Voices of Recovery

• Organizing and mobilizing the millions of Americans in long-term recovery from alcohol and other drug addiction, our families, friends, and allies, to speak with one voice. 

• Changing public perceptions of recovery• Promoting effective public policy in

Washington, D.C. and in all 50 states• Keeping a focus on the fact that recovery

works and is making life better for over 20 million Americans.

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Faces & Voices of Recovery

• Raises the recovery movement’s national profile

• Supports local recovery advocacy and recovery community organizations

It is our mission to bring the power and proof of recovery to everyone

in America!

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Many Pathways to Recovery

• Mutual support/mutual assistance

• Professional treatment

• Faith/religious

• Medication-assisted

• Criminal justice/Drug Court

• “Natural” or on your own

• And many more

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Message of Hope

“Many of us have carried a message of hope on a one-to-one basis; this new recovery movement calls upon us to carry that message of hope to whole communities and the whole culture. It is time we stepped forward to shape this history with our stories, our time and our talents.”-William White Author and Recovery Advocate

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What is a Message? • An exchange of information using

words

• The most important information you want your listener to hear

It is crucial that you know what you want to say and leave in

people’s minds.

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Grounded in Research Recovery Community

• 88% believe it is very important for the American public to see that thousands get well every year

General Public• A majority of Americans (63%)

have been affected by addiction• A majority (67%) believe that there

is a stigma toward people in recovery

• A majority (74%) say that attitudes & policies must change

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Who are You Talking to? • Family

• Friends• Neighbors• Co-workers• Media• Public officials

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YourFrameof Mind

• Speak with one voice

• Make it personal; it adds credibility and breaks down misperceptions

• Talk about your recovery, not your addiction – your recovery story

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12-Step Anonymity• These messages

don’t violate the traditions of your 12-step fellowship

• Help us educate others in 12-step groups about their right to speak out!

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CoreMessage The Problem:

• Need more opportunities for people to achieve long-term recovery

• Need more effective treatment and recovery support services

• There are discriminatory policies • The public and policymakers

don’t know about the reality of recovery

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CoreMessage The Solution:

• A strong national recovery movement organized at the local, state and federal levels

• Putting a face and a voice

on recovery to break down misperceptions that will change attitudes (stigma)

• Advocating to change policies (discrimination)

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Putting a Face & a Voice on Recovery: Messagefor a Personin Recovery

I’m in long-term recovery which means...

• Have not used alcohol or other drugs for x number years

• Long-term recovery has given me new hope and stability

• I’ve been able to create a better life for myself, my family and my community

• I’m speaking out so that others have the opportunity to achieve long-term recovery

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Putting a Face & a Voice on Recovery:Message for a Family Member

I and my family are in long-term recovery, which means …

• (My son/daughter/husband/wife) hasn’t used alcohol or other drugs for x years

• We’ve become healthier together, enjoying family life in our home

• Long-term recovery has given me and my family new purpose and hope for the future

• I want to make it possible for others to do the same

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What’s Notin theMessageand Why

• I’m an addict (or alcoholic)

• I’m a recovering addict (or alcoholic)

• Addiction is a disease

• Information about 12-step programs, for examples membership in AA or NA or Al-Anon

• A “definition” of recovery

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WordsHavePower

“Words have immense power to wound orheal…The right words catalyze personaltransformation and offer invitations tocitizenship and community service. Thewrong words stigmatize and dis-empower.”

-William White Author and Recovery Advocate

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Thinkingabout Language

Words/Concepts We Need to AbandonAbuseSelf-HelpUntreated Alcoholics/Untreated AddictsThe Language of Self-Pity

Words/Concepts to Discuss and DebateTreatment WorksConsumer Stigma, Enable, RelapseRecovering/Recovered

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Thinkingabout Language

Words/Concepts We Need to Elevate and Celebrate•Recovery, Recovery Community/ Communities of Recovery•Advocacy, Sustainability•Recovery Support Services/Recovery Coach•Recovery-Oriented Systems of Care•Living Proof•Story•Responsibility, Gratitude, Service

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Faces & Voices MessageGoals

• Expand opportunities for recovery• Mobilize and organize the recovery

community to advocate for own rights and needs

• Break down discriminatory barriers• Build our national recovery advocacy

movement • Achieve a just response to addiction

as a health crisis

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When can I Use the Message?

• When talking to your family, friends and neighbors

• When writing (articles, newsletters, blogging, etc.)

• When talking to elected officials, public policy makers and others in government

• When being interviewed or speaking in public

• ALWAYS!

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Audience• The reporter is NOT your audience – it

is the viewer, listener or reader• Think about talking to someone you

knowNever lose sight of who you are trying to

reach

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Techniques: Working with a Reporterand Stayingon Message

If you get a question you don’t want to answer, change the question by using a transitional or “pivoting” phrase such as:

• “Another thing to remember…” • “That’s not my area of expertise, but what

I can tell you is…” • “Another way of thinking about this is…”• “Thank you for asking…”• “The most important thing to remember…”

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Techniques: Staying on Message

Q. “Some people believe addiction is a personal or moral weakness. How do you respond?”

A. “More important than addiction…is recovery. The fact is that treatment and recovery have proven to work for millions of Americans like me.”

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Techniques: Staying on Message

Q. “What was it like to be an addict?”

“What I can tell you about is recovery. As a person in long-term recovery, I’ve been able to create a better life for myself and my family. Over the last 15 years, I’ve bought a house, have a great job and am a parent to three wonderful kids.”

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Recovery Messaging Resources

• Recovery Messaging from Faces & Voices of Recovery

• Recovery Messaging Questions & Answers

• The Tip Sheet for Media Interviews

• Our Stories Have Power DVD featuring interviews by people in recovery, family members and friends

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Summary • Use Faces & Voices recovery messaging to tell your recovery story

• Make it personal

• Use your message in all parts of your life with

Family and friendsNeighbors and co-workersMedia and public officialsAlways!

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Our Goals• Learn tips to prepare for interviews

• Learn techniques for working with reporters

• Learn tips on how to look, act and speak your best

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Preparation• Decide if this interview makes

sense for you and your organization

• Determine your primary goal in participating in the interview

• Role play the interview and rehearse hard questions

• Visualize your audience and speak to them as though they were in the room

• Assume that everything you say will be recorded or written down

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Prepare for Interviews: Know Your Message

• Know in advance which points you want to get across – work them into your responses

• Focus on your key points, not the interviewer’s points

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Prepare for Interviews: Deliver Your Message

• Use colorful language such as metaphors or analogies that help to make your point to increase the likelihood of being quoted

Example: “Recovery helped me pick up the shattered pieces of my life.”

• Use anecdotes from your work, your life and your community to support your points

• Speak in lay person’s terms – if you must use jargon or technical language, explain it

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Why is it important toshare storiesof Recovery

Actress and Comedienne Kristen Johnston

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Prepare for Interviews: Facts YouCan Use

• Tens of thousands of Americans recover from addiction every year

• Over 20 million Americans are in long-term recovery from addiction

• Untreated addiction costs the US over $450 billion every year

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Prepare for Interviews: Facts YouCan Use

• 75% of people with alcohol or other drug problems are employed.

• Jails and prisons are over crowded with a majority of inmates having committed alcohol or drug-related crimes.

• More than eight out of every ten Americans who need services for addiction to alcohol and other drugs are not receiving the help they need to get well.

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Techniques: Working witha Reporterand Stayingon Message

If you get a question you don’t want to answer, change the question by using a transitional or “pivoting” phrase such as:

• “Another thing to remember…” • “That’s not my area of expertise,

but what I can tell you is…” • “Another way of thinking about

this is…”• “Thank you for asking…”• “The most important thing to

remember…”

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Techniques: Staying on Message

Q. “Some people believe addiction is a personal or moral weakness. How do you respond?”

“More important than addiction…is recovery. The fact is that just like me, over 20 million Americans are in long-term recovery from addiction.

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Techniques: Staying on Message

Q. “What was it like to be an addict?”

“What I can tell you about is recovery. As a person in long-term recovery, I’ve been able to create a better life for myself and my family. Over the last 15 years, I’ve bought a house, have a great job and am a parent to three wonderful kids.”

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Techniques: Speaking Effectively

• Be brief – responses to questions should be short; 18-30 second sound bites.

• THE HARD TRUTH: IF IT ISN’T SHORT IT DOESN’T GET USED

“For the first time, the recovery community is speaking in one voice to change the public perception of recovery and to promote effective public policy.”

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Keys to Successful Television Interviews

• Be prepared to make only one point

• Talk as though you were talking with a friend

• Expressions• Overemphasize positive

expressions (negative characteristics are exaggerated on TV)

• SMILE

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Pre-Interview • Make sure you have water

• Introduce yourself to the technicians

• Chat with the interviewer before it starts • Make clear what you want to

cover• Get a sense of what s\he wants

to discuss

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Posture and Eye Contact• Sit as far back in your chair as

possible

• Lean slightly forward

• Maintain eye contact with the interviewer

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AppearanceMen• Darker suits are best

• Red, maroon or gray ties without distracting patterns are best

• Socks should be same or darker color than suit

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AppearanceWomen• Dress in neutrals and avoid large

patterns

• Don’t wear big jewelry

• Don’t wear too much or too bright lipstick

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Keys to Successful Radio Interviews

• Keep your answers shortGenerally only one or two sound bites will be used

• If it’s a phone interview, stand up

• Be expressive and animated

• Speak clearly and at a moderate pace

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Keys to Successful Print Interviews

• While often longer, use only a small portion of what you say gets used

• In the longer format, it’s easier to get off track

• Remember your key message and deliver it

• Flag your key messages by saying things like “the most important point” or “what people should really know is”

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Keys to Successful Print Interviews

• Don’t let your guard down. Remember anything you say can be included in the story

• Hard questions don’t mean that the reporter has taken a side

• If you are unsure of an answer, tell the reporter that you will get back to them

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Summary • Prepare for your interviewKnow your key messagesPracticeDress appropriately

• Deliver your key messages

• Think about your audienceUse your voiceMaintain eye contact

• Stay on message

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Conclusion • Use Faces & Voices recovery

messaging to tell your recovery story• Make it personal• Use your message in all parts of your

life withFamily and friendsNeighbors and co-workersMedia and public officialsAlways!

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Why Is It ImportantTo Share Our StoriesIf I Only Knew How Important It Is To PutA Face On Recovery!!

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Unite to Face Addiction 2015Rally for Recovery Washington DCAnd once you

have shared your story- you will join thousands of us who have United to Face Addiction

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Kim Manlove, DirectorIndiana Addictions Issues CoalitionMental Health America of Indiana kim.m@the24group.org 317-331-5949

Advocating for ChangePresenters:• Gary Mendell, MBA, Founder and CEO, Shatterproof• Kim Manlove, MS, AB, Director, Indiana Addictions

Issues Coalition

Advocacy Track

Moderator: Wendy Spencer, CEO, Corporation for National and Community Service