如何留下最美的【網絡遺言】 · 11/13/13 1 如何留下最美的【網絡遺言】$...
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11/13/13
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如何留下最美的【網絡遺言】 黎曉洋 Ryanne Lai Perpetu Co-‐Founder
11/13/13
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JUSTIN ELLSWORTH (aged 20)
-‐ Killed in 2004
-‐ Parents wanted access to his Yahoo email account
-‐ Yahoo Terms of Service:
-‐ Parents sued
-‐ April 2005: court ordered Yahoo to provide the family with a CD containing their son's emails
-‐ Burden to your loved ones
-‐ Privacy concern
“Upon receipt of a copy of a death cerFficate, your account may be terminated and all contents therein permanently deleted.”
BECKY PALMER (aged 19)
2010 January • Brain tumour • Surgery & chemotherapy
2010 June • Lost ability to speak/write/read • Mother began logging into Becky’s Facebook account.
2010 Dec • Passed Away • Becky's Facebook account memorialized • Became “an uncared-‐for grave with weeds growing on it"
“The loss of my only child has been heartbreaking. But at least in my darkest hours I could log in to her Facebook account and read her messages, remembering her as the vibrant girl she used to be."
“She loved me to read out messages from all her friends."
April 2013
• commiIed suicide
• Brother has password, kept his Facebook account acNve
• Ex-‐girlfriend posted something negaNve around B.J.’s birthday.
• Facebook representaNve: "That message is also memorialized—forever”.
B.J. (aged 40)
“I am protecNng my liIle brother, who can't fight back.”
ALISON ATKINS (aged 16)
-‐ Toronto girl diagnosed with ulceraNve coliNs (潰瘍性結腸炎)
-‐ Raised money & awareness for people living with ostomies
-‐ counseled suicidal kids online
-‐ Family not sure whether she overdosed herself
-‐ Tried to access her Internet accounts to find photos & beIer understand her thoughts in her final days
1. Cracked laptop password 2. Logged into her online accounts 3. Posted to her Facebook 4. Approved 20 new friends, who then wrote
tesNmonials 5. Found her secret blog 6. Changed her Facebook privacy seangs
Right to Privacy? Mother: ”She was my child. I felt I had a right to know.”
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Acer a while…
-‐ AutomaNcally logged out -‐ Family did not have the passwords, failed to reset passwords (couldn’t answer security quesNons) -‐ Facebook account was gone enNrely -‐ Profile photo replaced by a generic outline of a head
Acer account deleted: -‐ Sister: "We just want her account back the way it was!” -‐ Facebook reacNvated and memorialized the account
Acer memorializaFon: -‐ Alison no longer appears in search results -‐ Family can no longer log in & add more friends
The Internet seems like "a scrapbook and a memory book that is going to be there forever—but it isn’t. It could all be gone in an instant.”
Juliana Ribeiro Campos
-‐Journalist in Brazil, died in 2012
-‐ Facebook profile turned into a “memorial wall”
-‐ Being reminded of her daughter’s premature death caused too much distress to the mother
-‐Mother asked FB to remove memorial
-‐ Sued FB ager being ignored by FB for 7 months
-‐ Judge ordered FB to delete the profile
Turning the girl’s profile into a memorial wall by Facebook went against “the right of personal dignity and inflicted great
suffering on the mother”.
Its core business proposiFon: to sell adverFsing at real living people.
Leaving dead people's accounts acNve runs counter to this proposiNon.
What about the daughter’s wishes?
Perhaps she would have wanted her Facebook memorial to remain online, to give her friends the strength to carry on,
and a place to remember her.
Why was Facebook so inconsiderate?
In the past:
Family pictures in boxes, easy to divide up.
Now:
-‐ Facebook could delete hundreds of photo albums that you've uploaded
-‐ Flickr may delete your photo collecNons
-‐ TwiIer may delete your feed
-‐ Google may delete your Gmail account & YouTube video channel
Loss of memorable content
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Facebook may turn your profile into a memorial page that aIracts spam.
Loss of your "online image"
Mrs. Palmer could not remove spam on her daughter's memorialised FB account
Alison Atkin’s FB profile photo replaced by the outline of a head
In the past:
Surviving famous last words -‐ reserved for public figures who knew they would soon die, and could prepare to uIer something meaningful.
Embarrassing “Last Words”
Now:
Everyone with an Internet connecNon stands to have their final status update memorialized, no maIer how meaningless / embarrassing.
• WORK EMAILS: never get replied, no one could manage them for you.
• WORK FILES stored on Dropbox forever buried.
• FACEBOOK PAGE / WEBSITE of your business will no longer be updated.
• ONLINE SHOP on Taobao can never offer new items to customers.
• SENSITIVE INFO you leave in your email, eBay or PayPal accounts may be misused.
Loss of Economic Assets
Possible… -‐ Your loved ones might be able to recover your online content by approaching each online service to seek access to or delete the content.
But not easy! -‐ Very bureaucraHc & lengthy procedure (e.g. Gmail) -‐ Might require going to court
Burden for your loved ones
It can be a tough process to have to wade through at a Hme when they are
trying to grieve.
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If you were to suddenly disappear from this world…
Your mother might be able to see All of your drunken Facebook photos.
Your father could have access to your Inappropriate TwiIer jokes to your girlfriends.
Your child could someday read those dirty emails you sent to your college boyfriend.
Loss of Privacy
What would JusNn Ellsworth or Alison Atkins have wanted?
Do you really want your family to access all your online data, even those you kept private?
NO CONTROL How to Protect Your Digital Legacy
#1 Make a list
#4 Nominate someone to act
#2 Decide what to do with them
#3 Store your list securely
#5 Reference your list in your will
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Update every month! -‐ add new accounts -‐ update passwords
#1 Make a list of everything you access digitally
EXAMPLE: Gmail URL: hIp://www.gmail.com DescripNon: My main email account Username: YYYYYYYY Password: XXXXXXXX Security Q&A: ____________________
-‐ anything with real monetary value -‐ anything with significant emoNonal worth -‐ any accounts which you use to back up your important files
Twimer
• Should a business associate / family member take over the account?
• Do you tweet for a cause, and want your message to conNnue geang out?
#2 Decide what to do with them
IMPORTANT: Always check the TOS of each service to see if what you want to do is allowed.
• Simply shut it down, or remain online as a memorial of your life? • Post an obituary / memorial type message before shuang it down? • Download all your data before deleNng the account?
TIP: Set up an album called "Use These at My Funeral" with your favourite profile photos. Ensure you look your very best during the memorial powerpoint presentaNon that your cousin hasNly puts together.
Email accounts
• Who should have access? • Who should help me reply to my emails? • Send/print emails before terminaNng the account? • Account retained with an auto-‐reply / auto-‐forward set up?
Video channels
• Post a memorial video? • Keep your videos up or have the account closed?
Cloud storage accounts
• How do you want those assets distributed?
Online Forums
• Are you acNve in online communiNes, forums or groups?
• If so do you want to inform the community when you die?
Find a secure place to put the informaNon, so it can be accessed when necessary.
SuggesFons: -‐ Print it on paper & locked away in a safe deposit box. -‐ Store in your phone, back up your phone to your computer.
#3 Store your list securely
#4 Nominate someone to act
-‐ trustworthy
-‐ tech-‐savvy: knows how to access your accounts, locate your files, and dispose of them as you have indicated
-‐ understands the value of your online assets
• No need to include the actual list in your will
• Update the list regularly without needing to pay your lawyer
#5 Reference your list in your will
Overseas iniFaFves:
US government encourages making of a Social Media Will: hIp://blog.usa.gov/post/22261234875/social-‐media-‐will
LegislaNon in 6 states of America: Patchwork of laws in some places. ProtecNon is sNll inadequate.
Australian CommunicaNons and Consumer AcNon Network (ACCAN) provided a pamphlet to assist ciNzens on how to manage their digital legacy: hIp://palliaNvecarewa.asn.au/site/australian-‐research-‐creates-‐new-‐consumer-‐resources-‐for-‐managing-‐digital-‐assets-‐death-‐and-‐the-‐internet/
Singapore Hospice Council (SHC) provided Nps to paNents: hIp://www.hca.org.sg/newsleIer/sepoct2013/01.html#.UntpSpTN_pg
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-‐ passwords change, updaNng is a hassle
-‐ your list could be lost
-‐ friends, relaNves or lawyer may not be tech-‐savvy enough to carry your wishes
-‐ your passwords may be used fraudulently
-‐ sharing passwords forces you to share an enNre account, all its content and funcNonality, prevenNng you from specifying just specific content to be shared
IT’S A HASSLE!
NEW ONLINE LEGACY
PLANNING TOOLS
Google InacFve Account Manager
When your account has been inacHve aOer a specified length of Hme,
-‐ Google will noNfy your trusted contact by email & phone
-‐ Google will let your trusted contact access the Google accounts you choose
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“To die with dignity is a right, not a privilege.” -‐-‐ Gabriel Byrne, Actor & Supporter of the Irish Hospice FoundaNon