Ymwybyddiaeth Ofalgar er Lles Rhieni Plant ag Anableddau Deallusol a Datblygiadol

Mindfulness-Based Support for Parents of Children with Intellectual and Developmental Disabilities

Dr Leah JonesYr Athro / Professor Richard HastingsDr Vaso Tostika

Ymwybyddiaeth ofalgar er lles rhieni plant ag anableddau deallusol a datblygiadolMindfulness-Based Support for Parents of Children with Intellectual and Developmental Disabilities

Pam fo angen cefnogi’r rhieni yma? Why do these parents need supporting?

Pam ymwybyddiaeth ofalgar? Why mindfulness?

Datblygu cwrs ar gyfer rhieni Developing a course for parents

Cynnal y cwrs yng Ngogledd Cymru Hosting a course in North Wales

Gwerthuso’r cwrs Evaluating the course

Pam fo angen cefnogi’r rhieni yma?Why do these parents need supporting?

Rhieni plant ag anableddau- yn enwedig awtistiaeth- yn adrodd lefelau uchel o ofid, yn cynnwys straen, gorbryder ac iselder Parents of children with disabilities- autism in particular- report elevated levels of distress, including stress, anxiety and depression

Gofid yn gysylltiedig ag ymddygiad plant, yn ogystal â ffactorau eraill, e.e. statws economaidd, rhwydwaith cefnogol, brwydro am wasanaethau Distress associated with child behaviours, as well as other factors, e.g. economic status, support network, battling for services

Nid pob rhiant sydd yn dioddef; mae’n bwysig darganfod sut fod rhai yn addasu/ymdopi yn fwy effeithiol nag eraill Not all parents experience negative outcomes; it’s important to understand how some paretns adjust more effectively than others

Tystiolaeth fod prosesau gwybyddol sy’n gysylltiedig ag ymwybyddiaeth yn chwarae rhan mewn lles y rhieni sydd yn addasu yn well (Jones et al, 2013) Evidence to suggest psychological processes associated with mindfulness are involved in better adjusted parents

Beth yw ymwybyddiaeth ofalgar?What is mindfulness?

Talu sylw yn fwriadol at brofiadau corfforol (meddyliau, ymdeimladau corfforol, emosiynau, ymddygiad) fel y maent yn digwydd yn y foment

Deliberately attending to our bodily experiences (thoughts, sensations, emotions and behaviours) whilst they unfold in the present moment

Yn chwilfrydig a gydag ‘meddwl dechreuwr’ With curiosity and a ‘beginners mind’

Heb farnu Without judgment

Heb geisio newid y profiad Accepting without trying to change the experience

Heb ymateb yn awtomatig Without reacting automatically

Sut i feithrin ymwybyddiaeth ofalgar?How to cultivate mindfulness?

Caiff ei ddatblygu drwy ymarferion myfyrdod It is developed through meditating

Wrth feithrin yr ymwybyddiaeth yma gallem:By fostering a mindful approach we are able to:

Gweld ein profiadau yn glir, a dewis sut i ymateb, yn lle ymateb yn awtomatig See our experiences more clearly and choose how to respond rather than react automatically

Troi tuag at anawsterau a sialensiau Turn towards difficulties and challenges

Adnabod patrymau ymdeimladau corfforol, emosiynau, meddyliau, ac ymddygiad Recognize sensations, emotions, thoughts and behaviours

Cydnabod, caniatau a derbyn ein profiadau Recognize, allow and accept experiences

Camu’n ôl Take a step back

Sylwi ar a gwerthfawrogi profiadau dymunol Notice and appreciate positive experiences

Datblygu cwrs ar gyfer rieniDeveloping a course for parents

Mae yna gyrsiau ymwybyddiaeth wedi eu sefydlu: There are established mindfulness courses:

Mindfulness-Based Stress Reduction (MBSR)

Mindfulness-Based Cognitive Therapy (MBCT)

Gwnaethom ni (gyda Ganolfan Ymwybyddiaeth Ofalgar Ymchwil ac Ymarfer, Prifysgol Bangor) ddatblygu cwrs newydd ar gyfer rieni: We developed a new course for parents in collaboration with the Centre for Mindfulness Research and Practice:

Mindfulness-Based Well-Being course for Parents (MBW-P)

Wedi ei sefydlu ar MBSR, ond ymarferion byrrach, a deunydd mwy penodol ar gyfer rieni, a mwy o bwyslais ar hunan-drugaredd Based on MBSR, with shorter practices, materials more specific to paretns, and with greater emphasis on self-compassion

Cynnwys Cwrs Ymwybyddiaeth Ofalgar er Lles Rhieni Mindfuless-Based Wellbeing Course-Parent Course Content

Wsos

Pwnc / Topic Gweithgareddau / Activities

1 Peilot AwtomatigAutomatic Pilot

Cyflwyniadau; Rheloau (e.e. cyfrinachedd, gwaith cartref); Myfyrdod Rhesin; Anadlu a’r Corff / Introductions; Rules (confidentiality, home practice); Rasin Meditation; Breathing practice

2 Hadau CaredigwyddSeeds of Kindness

Anadlu a’r Corff; Trafod gwaith cartref; Sgan Corff; Planu Hadau Caredigrwydd; Cysylltu ymdeimladau, meddylaiu ac emosiynau / Breath and Body Meditation; Discuss home practice; Body Scan; Seeds of Kindness; Linking sensations, thoughts and emotions

3 Dysgu am straenLearning about stress

Anadlu a’r Corff; Trafod gwaith cartref; Dysgu am beth sy’n digwydd iddym pan o dan straen; Symud Ymwybodol; Sgan Corff / Breath and Body; Discuss home practice; What happends when we’re stresed; Mi9ndful Movement; Body Scan

4 Gweithio gyda straenWorking with stress

Symud Ymwybodol, Trafod gwaith cartref; Anadlu 3 Cam; Anadlu a’r Corff / Mindful Movement; Home practice discussion; Three-step breathing space

5 Ymateb i broblemauResponding to difficulties

Anadlu a’r corff; Trafod gwaith cartref; Archwilio anhawster; Ymateb yn Ymwybodol; Symud Ymwybodol / Breath and Body; Disuss home practice; Respomding Mindfully; Mindful Movement

6 CyfathrebuCommunicating

Myfyrdod Eistedd; Trafod gwaith cartref; Symud Ymwybodol; Gwrando yn Ymwybodol; Trafod patrymau cyfathrebu / Sitting Meditation; Discuss home practice; Mindful Movement; Mindful Listening; Patters of communicating disussion

7 Byw ein bywydauLiving our lives

Myfyrdod Eistedd; Trafod gwaith cartref; Symud Ymwybodol;Trafod gwerthoedd / Sitting Meditation; Discuss home practice; Mindful Movement; Values discussion

8 Gweddill ein bywydauThe rest of our lives

Myfyrdod Eistedd; Trafod gwaith cartref; Trafod sut i barhau gyda’r ymarferion wan fod y cwrs yn terfynu / Sitting Meditation; Discuss home pracice; Disussion- how to continue with practices now the course is ending

Gweithgareddau ymarfer cartref bob wythnos yn seiliedig ar gynnwys dosbarth yr wythnos hwnnw / Weekly home practices basaed of content of that week’s session

Cynnal y cwrs yng Ngogledd CymruHosting the course in North Wales

3 cwrs mewn 3 ysgol Anghenion Arbennig 3 courses in 3 Special Educational Schools

Dros 300 gwahoddiad- 10% yn ymateb Over 300 paretns invited- 10% responded

O’r rhain wnaeth 21 rhiant yn gwblhau cwrs (18 mam, a 3 tad; 1 cwpl) Of which 21 paretns completed a couse (18 mothers, 3 fathers, 1 couple)

17 rhiant yn cyd-fyw gyda phartner, 4 yn sengl 17 parents were cohabiting with a partner, 4 paretns were single

44.65 mlwydd oed ar gyfartaledd On average 44.65 years of age

16 rhiant yn gweithio, 5 yn ddi-waith 16 parents were employed, 5 unemployed

Canolrif incwm teulu £25,000- £35,000 Modal household income £25,000-£25,000

Cynnal y cwrs yng Ngogledd CymruHosting the course in North Wales

Plant y rhieni yn 10.53 mlwydd oed, ar gyfartaledd Parents’ children were on average 10.53 years of age

Wedi derbyn diagnosis 5.11 blynedd yn gynharach Children received their diagnosis on average 5.11 years previously

16 diagnosis o Anhwylder Sbectrwm Awtistiaeth 16 children had a disganosis of an Autism Spectrum Disorder

1 x syndrom Down / Down syndrome; 2 x Parlys yr Ymennydd / Cerebral Palsy; 2 x anabledd deallusol cyffredinol / general learning disability

13 x bachgen / boys; 8 x merch/girls

15 o’r pant mewn ysgol angenion arbennig / 15 children attending a special educational school

I gyd yn byw gartra hefo rhieni / all children living at home with parents

Gwerthuso’r CwrsEvaluating the Course

Rhieni yn cwblhau pecyn o holiaduron cyn ac wedi’r cwrs Parents complete a questionnaire pack before and after the course

Cyfranwyr yn sylweddol: Participants were significantly:

Mwy ymwybodol / more mindful (p = .008; d = 0.49)

Mwy hunandosturiol / more self-compassioante (p = .039; d = 0.39)

Llai dan straen / less stressed (p = .031; d = 0.49)

Er ddim yn sylweddol, roedd hefyd newidiadau mewn lefelau: gorbryder, iselder a phrofiadau cadarnhaol Although not to significant levels, there were positive changes to levels of anxiety, depression and positive gains

Boddhad gyda wahanol agweddau’r cwrs Satisfaction with different aspects of the course

BodlonSatisified

Ddim yn siwrNot sure

AnfodlonDissatisfie

d

Lleoliad Location

19 2 0

Gofynion amser Demand on time

19 1 1

Cefnogaeth yn y sesiynau Support during sessions

20 0 1

Cefnogaeth rhwng sesiynau Support between sessions

18 2 1

CytunoAgree

Ddim yn siwrNot sure

Anghytuno

Disagree

Wedi elwa o fynychuBenefitted from attending

20 1 0

Am barhau i ymarferWill contine with practices

16 5 0

Argymell i eraillWould recommend to others

20 1 0

Casgliadau / Conclusions

Mae’n anodd dod i gasgliad penodol wedi astudiaeth ‘peilot’ It’s difficult to come to definitive conclusions following a pilot study

Mae’r canlyniadau yn awgrymu bod hyfforddiant ymwybyddiaeth ofalgar yn fuddiol i rieni, ac yn annog ymchwiliad pellach The results do suggest that mindfulness-based support is beneficial to parents and therefore warrants further investigation

Adnoddau / Resources

www.bangor.ac.uk/mindfulness (CMRP Bangor)

www.bemindful.co.uk (Mental Health Foundation)

www.bemindfulonline.com (Mental Health Foundation)

www.franticworld.com/ (Finding Peace in a Frantic World)

Diolch am wrando

Thank you for listening

Am fanylion pellach cysylltwch â:

For further information please contact:

leah.jones@bangor.ac.uk