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    Federal AIDS Policy Partnership MeetingApril 28, 2010

    Health Care Reform:Update on Federal Efforts toImprove Access to Care for

    People Living with HIV/AIDS

    Robert Greenwald & Laura HanenCo-Chairs, HIV Health Care Access Working Group

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    Part 1:Why our current health care systemfails to meet the health care needs of

    people living with HIV and AIDS

    Part 2:

    Federal efforts to increase access tocare through health care reform

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    HIV/AIDS v. General Population:Health Care Coverage

    SOURCE: Kaiser Family Foundation based on Fleishman JA et al., Hospital and Outpatient Health Services Utilization Among HIV-Infected Adults in Care 2000-2002, MedicalCare, Vol 43 No 9, Supplement, September 2005.; Fleishman JA, Personal Communication, July 2006

    General Population PWHIV/AIDS

    Population: 293 Million

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    US Population and Peoplewith HIV/AIDS

    Income & Unemployment

    SOURCE: Kaiser Family Foundation based on US Census Bureau, 2006; Kaiser State Health Facts Online;Cunningham WE et al. Health Services Utilization for People with HIV Infection Comparison of a Population Targetedfor Outreach with the U.S. Population in Care. Medical Care, Vol. 44, No. 11, November 2006. NOTE: US income datafrom 2005, US unemployment data from 2006. 1998 estimates were also 8% and 5%, respectively, rounded to nearestdecimal; HCSUS data from 1998.

    8%

    5%

    45%

    62%

    Income

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    Medicaid

    andMedicare

    Entitlement Programs.

    Both programs have the same

    cruel disability standard !!!

    You have to get sick and disabled to getaccess to the health care services thatcould have prevented you from getting

    sick in the first place.

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    Public Funding HIV/AIDS Care:

    Including Ryan White (FY 2008)

    Total= 4.3 Billion

    edi are

    3 %

    4.5B

    an ite

    18%

    .6BMedi aid

    5 %

    7. B

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    Number of People Living with AIDS in the USvs. Ryan White Funding (adjusted for inflation)

    -10

    -5

    0

    5

    10

    15

    20

    25

    30

    35

    2002 2003 2004 2005 2006 2007

    % change inthe numberof peopleliving withAIDS

    % change inRyan Whitefunding

    Sources: Estimated Number of Persons Living with AIDS, Centers for Disease Control and Prevention,http://www.cdc.gov/hiv/topics/surveillance/resources/reports/2007report/table12.htm; Ryan WhiteAppropriations History, Health Resources and Services Administration,

    ftp://ftp.hrsa.gov/hab/fundinghis06.xls. Inflation calculated using http://www.usinflationcalculator.com/.

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    Private and Public Health Care ProgramsAre Failing People Living with HIV/AIDS

    Private Insurance: Employer-based system doesnt work well for low-income

    or unemployed

    Medicaid/Medicare: Disability care systems, not health care systems

    Medicaid Benefits are insufficient & vary by state

    Medicare Part D out-of-pocket co-pays too high

    ADAP/Ryan White Program: You cant fund the health care needs of an epidemic

    through a discretionary program

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    44.7

    4748.4

    39.8

    2000 2003 2006 2009

    Uninsured in Millions

    Number of Uninsured Americans

    We are not alone!

    The health care system is failing

    more and more Americans each year.

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    PART 2

    Update on health care reform:Efforts to improve access to care

    for people living with HIV and AIDS

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    Medicare Reform

    Improvements: Eliminates cost sharing for some preventive services

    Part D donut hole closed by 2020

    $250 rebate in donut hole (only in 2010)

    ADAP as TrOOP (beginning 2011)

    50% brand-name discount (beginning 2011)

    Phase-down of consumer co-pay for generics (2011-2020)

    Phase-down of consumer co-pays for brand names (201 -2020)

    Limitations:

    Closing donut hole over 10 years is too slow

    Actual out-of-pocket maximum not decreased for

    consumers generic medications

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    Medicare Part D Coverage:

    The Donut Hole in 2010 (pre-reform)

    $0- $310

    $ +

    Consumer Pays

    Deductible

    Donut Hole

    Coverage

    Gap

    Total

    Spending

    95%

    80% Feds Pay

    Reinsurance

    15% Plan Pays

    CatastrophicCoverage

    Federal Government Pays

    75% Plan Pays

    25% out-of-pocket

    5% out-of-pocket

    Private plan Pays

    $630 $3,610

    Consumer

    Out-Of-

    Pocket

    $310

    Totalconsumeroutofpocket = $4,550

    $2,830 -$6,440$310-$2,830

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    Post-Reform Medicare Part D Coverage:

    The Donut Hole in 2010

    $0- $310

    $ +

    Consumer Pays

    Deductible

    Donut Hole

    Coverage

    Gap

    Total

    Spending

    95%

    80% Feds Pay

    Reinsurance

    15% Plan Pays

    CatastrophicCoverage

    Federal Government Pays

    75% Plan Pays

    25% out-of-pocket

    5% out-of-pocket

    Private plan Pays

    $630 $3,610

    Consumer

    Out-Of-

    Pocket

    $310

    Totalconsumeroutofpocket = $4,550 - $250 rebate = $4,300

    $2,830 -$6,440$310-$2,830

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    Post-Reform Medicare Part D Coverage:The Donut Hole in 2020 (brand-name)

    $0- $310

    $ +

    Consumer Pays

    Deductible

    Donut Hole

    Coverage

    Gap

    Total

    Spending

    95%

    80% Feds Pay

    Reinsurance

    15% Plan Pays

    CatastrophicCoverage

    Federal Government Pays

    75% Plan Pays

    25% out-of-pocket

    5% out-of-pocket

    Private plan Pays

    $630 $3485Consumer

    Out-Of-

    Pocket

    $310

    Totalconsumeroutofpocket = $4,550

    $2,830 -$7,643$310-$2,830

    50%

    Manufacturer

    Discountas

    TrOOP

    25% out-of-pocket

    25% Plan Pays

    Totalconsumeroutofpocket = $2,143

    $1,203

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    Post-Reform Medicare Part D Coverage:The Donut Hole in 2020 (generic)

    $0- $310

    $ +

    Consumer Pays

    Deductible

    Donut Hole

    Coverage

    Gap

    Total

    Spending

    95%

    80% Feds Pay

    Reinsurance

    15% Plan Pays

    CatastrophicCoverage

    Federal Government Pays

    75% Plan Pays

    25% out-of-pocket

    5% out-of-pocket

    Private plan Pays

    $630 $3,485Consumer

    Out-Of-

    Pocket

    $310

    Totalconsumeroutofpocket = $4,550

    $2,830 -$17,270$310-$2,830

    75% Plan Pays

    25% out-of-pocket

    Totalconsumeroutofpocket = $4,550

    $3,610

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    Private Health Insurance Reform:

    Creation of Exchanges

    Exchanges are portals for consumers(individuals and small businesses) tocompare and buy health plans

    Exchanges certify plans that are compliantwith all health care reform requirements

    States must set up and begin administrationof exchanges by 2014

    States have option to include large groupmarket (101+ employees) starting in 2017

    Exchanges include new OPM-certified multi-state plans and non-profit coop plans but no

    public option

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    Additional Private Health Insurance Reforms

    Exchange Reforms Increased Coverage creates a new mandatory benefits package

    (2014)

    Increased Affordability premium subsidies and cost-sharingassistance for people up to 400% FPL (2014)

    Increased Access limits variation in premium ratings (2014)

    Additional Reforms

    Increased Access largely eliminates discrimination based on healthstatus (2010-2014)

    Requires individuals to purchase health insurance (2014)

    Establishes a temporary high-risk insurance pool to cover those withpre-existing conditions (starting within 90 days)

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    Private Health Insurance Reform: Limitations

    No national plan, so state variation continues

    Insurance reforms do not apply to existing,

    large group and self-insured plans

    Vision and dental coverage are not includedin mandated benefits package

    Subsidies dont fully solve the affordabilitygap

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    Total Out-Of Pocket Cost to Consumer:Premium and Cost-Sharing

    Maximum Consumer Spending

    0

    1000

    2000

    3000

    4000

    5000

    6000

    7000

    8000

    9000

    10000

    100 150 200 250 300 350 400

    Income (% FPL)

    Maximu

    mT

    otalAnnualConsumerShare

    $15,000

    $2,160 (14%)

    $20,000

    $2,791 (14%)

    $25,000

    $4,340 (17%)

    $30,000

    $5,150 (17%)

    $35,000

    $6,658 (19%)

    $40,000

    $7,133 (18%)

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    Other Key Provisions: New Investments

    Invests in prevention, wellness, and publichealth activities

    Invests in efforts to reduce health disparities

    Supports clinical workforce development withan emphasis on serving vulnerable populations

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    Public Health and Prevention

    Prevention and Public Health Fund $500 million in FY10 growing up to $2 billion in FY15 Food fight for resources by agencies and body

    parts/diseases

    Concern that infectious diseases will be left out Creates the National Prevention, Health

    Promotion and Public Health Council Provide coordination and leadership at federal level Develop a national strategy

    Community Health Center Fund $11 billion over five years

    Expands USPSTF and CPSTF

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    Public Health and Prevention Coverage of clinical preventive benefits under all

    forms of insurance Eliminates cost sharing for services with A or B under

    USPSTF 1% increase in Medicaid FMAP for providing these

    services in 2013 Incentives for chronic disease prevention under

    Medicaid Medicare annual visit and personalized prevention

    plan

    Such sums as Necessary grant programs Workforce training both clinical and public health

    Community transformation grants

    Many others

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    Sex Ed Funding

    Personal Responsibility Education Program(PREP) $75 million for states for evidence-based

    programs to prevent unintended pregnancy

    and STIs, including HIV/AIDS, and researchand evaluation If a state does not submit an application for

    Fiscal Years 2010 or 2011, Secretary canaward three-year grants to community-based

    and faith-based organizations

    Reinstitution of the $50 million Title VAbstinence Education Formula Block Grants tostates

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    NEXT STEPS:Health Care Reform Implementation

    Securing bridge to 2014 Medicaid expansion throughemergency ADAP funding, ETHA and state option tostart expansion early

    Ensuring HIV inclusion in prevention, wellness, healthdisparities and workforce investments

    Defining essential health benefits package for privateinsurance

    Facilitating eligibility and enrollment in temporary high-risk insurance pool

    Securing community representation on Community

    Preventive Services Task Force and other task forces

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    Next Steps for Working Group

    Updating presentation for all to use

    Creating list of resources

    Collecting Q&A and FAQs Timeline of implementation

    Fact sheets on various aspects of law

    Ryan White and Health Reform document

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    Contact Information

    Robert Greenwald

    TAEP

    [email protected](617) 390-2584

    Laura Hanen

    NASTAD

    202-434-8090

    [email protected]